Blue Denim pushpin board. On left is a white piece of paper that says 5 steps to build a self-care routine. In the bottom middle is a yellow post it that says I can do it. In the upper right is a pink post-it on top an orange post-it that's slightly skewed so you can see the orange below. The pink post-it says take care of yourself.

Self-Care Revolution: 5 Steps to Build a Routine That Fits Your Life (and Actually Sticks)

Build a self-care routine that actually works for you!

Self-care is everywhere! We see it plastered on mugs, addressed through motivational quotes, and championed by celebrities, healthcare professionals, and wellness experts aline. But for many of us, self-care feels less like a revolutionary act and more like another item on the ever-growing to-do list that just causes more stress. Here’s the truth: self-care isn’t a one-size-fits-all solution. We have to figure out what works for us! A lavender-scented bubble bath that melts your friend’s stress might leave you wide awake and jittery. The key to self-care success is creating a personalized routine that works for you.

Turquoise background with a thin grey boarder. Three purple clouds with orange shadows. In the bottom left is a large cloud that says too big. In the middle right is a small cloud that says too small. In the center towards is a medium-sized cloud that says just right. The image is to depict finding your self-care sweet spot.Step 1. Find Your Self-Care Sweet Spot

Let’s ditch the self-care guilt trip right off the bat. You are worthy of prioritizing your well-being, no matter how jam-packed your schedule feels. The first step? Tune into your needs. What areas of your life feel depleted? Are you constantly dragging yourself out of bed, existing on a low-grade hum of exhaustion? Does your mind race even after you clock out of work? Identifying your needs will be your compass, guiding you towards the self-care practices that will have the biggest impact.

 

Turquoise background with a thin grey boarder. The text says brainstorm like a boss. there's a cartoon person in an orange shirt with purple pants sitting on a purple box. There are 5 thinking bubbles. One has a document, one has a bullseye, one has a lightbulb, one has a pawn from chess, and the final has a sand clock. There's also a yellow pot with purple plant.Step 2. Brainstorm Like a Boss

Grab a notebook, ditch your inner critic, and unleash your creativity. Make a list of activities that bring you joy, a sense of accomplishment, or simply a feeling of deep relaxation. This list can be as unique and individual as you are. Does curling up with a good book transport you to another world? Does getting lost in a dance class leave you exhilarated? Maybe it’s the quiet pleasure of savoring a cup of tea on your porch, listening to the birdsong. Don’t be afraid to include activities that seem “unproductive” – sometimes the most effective self-care involves simply allowing yourself to be present in the moment.

 

Turquoise background with a thin grey boarder. Cartoon person sitting on a purple box. Person has on a yellow shirt and dark, likely blue or black pants. there's two gears, one black and one orange with a clock in the middle. There's also a picture of a calendar and a paper airplane. The text says tailor to your timeStep 3. Tailor It To Your Time

Let’s be real, we all have a finite amount of time in a day, so we have to be realistic! Start small and identify self-care practices that can be woven into the fabric of your existing routine. Even five minutes of mindful breathing in the morning can make a world of difference. Here’s a breakdown to get you started:

  • Daily: Can you incorporate a short meditation session into your morning routine while your coffee brews? Pack a healthy lunch to nourish your body instead of grabbing greasy takeout? Even small changes can have a big impact.
  • Weekly: Schedule a relaxing bath with essential oils and calming music, or plan a social outing with friends for some laughter and connection.
  • Monthly: Treat yourself to a massage or a spa day. Maybe plan a weekend getaway to reconnect with nature or explore a new city.

 

Turquoise background with a thin grey boarder. Text says make it a ritual. There is a 3 arrow cycle around a clock centered in the image. between the arrows is a sun, a moon, and a rising sun.Step 4. Make it a Ritual

A ritual is a set of actions performed in a specific way. Transform your self-care practices into rituals. This will not only make them more enjoyable, but also help them become a natural part of your day, increasing their effectiveness. Eventually, it will become so second nature you won’t even have to think about doing it, like brushing your teeth. Light a scented candle before meditation, brew your favorite herbal tea for afternoon unwinding, or create a dedicated playlist for your morning walks. These rituals will act as cues, reminding you to prioritize your well-being.

 

Turquoise background with a thin grey boarder. Text reads embrace flexibility. There is a cartoon person without a face and a grey top. there is a circle around the person that, just before it comes to a full circle it veers off to the right and an arrow points to a shining yellow star. The arrow is orange and red.Step 5. Embrace Flexibility

Let’s ditch the self-care guilt trip right off the bat. You are worthy of prioritizing your well-being, no matter how jam-packed your schedule feels. The first step? Tune into your needs. What areas of your life feel depleted? Are you constantly dragging yourself out of bed, existing on a low-grade hum of exhaustion? Does your mind race even after you clock out of work? Identifying your needs will be your compass, guiding you towards the self-care practices that will have the biggest impact.

 

Remember: Self-care is a journey, not a destination. Be patient, experiment, and find what works best for you. By taking care of yourself, you’ll be better equipped to handle life’s challenges and shine even brighter in all areas.

**BONUS**

Turquoise background with a thin grey boarder. There is a large calendar and a person the same size as the calendar in a purple shirt, black skirt, yellow socks and orange shoes. The person has grey hair and dark skin. They are checking off something on the calendar. The text reads track progress.Bonus Tip: Track your progress! Jot down how you feel after each self-care activity. This will help you identify the practices that have the biggest impact on your well-being and refine your routine over time.

Connect with a Peer Specialist

Build a self-care routine that actually works for you! Self-care is everywhere! We see it plastered on mugs, addressed through motivational quotes, and championed by celebrities, healthcare professionals, and wellness experts aline. But for many of us, self-care feels less like a revolutionary act and more like another item on the ever-growing to-do list that just […]

Continue reading "Self-Care Revolution: 5 Steps to Build a Routine That Fits Your Life (and Actually Sticks)"
Kathleen Totemoff, Founder and President of iExist, LLC discusses technology for connection, treatment, and recovery

Leveraging Technology for Recovery

Kathleen Totemoff: Connecting People and Innovation | Reduce The Stigma

Kathleen Totemoff has long dark hair and straight bangs. She is wearing a white button down shirt and dark coat.
Connection is essential so people don't fall through the cracks of treatment and recovery

This episode of Reduce The Stigma features Kathleen Totomoff of iExist, a tech-focused organization that aims to address substance use disorders and recovery through innovative technological solutions. Kathleen discusses how iExist bridges the gap between those struggling with addiction and the tech tools available to support their recovery journey.

The conversation highlights the importance of meeting individuals wherever they are in their recovery process, whether actively using, in early recovery, or maintaining sobriety. Kathleen emphasizes the need for tailored support and resources throughout this journey.

Collaboration is another key theme. Kathleen stresses the importance of working together and utilizing a diverse range of solutions to effectively tackle the opioid epidemic. She shares her experiences working with various technologies and organizations to create a seamless support system, including for those in correctional facilities and those reintegrating back into society.

Throughout the discussion, Kathleen prioritizes individual needs and removing barriers to access, such as cost and stigma. Her core message is one of encouragement: be kind to yourself, don’t lose hope, and actively seek out the resources and support available to you.

Click here for the episode’s full transcript.

Straight Up Care is one of the technology innovations reshaping recovery. Visit Straight Up Care online or download the app (available for iOS and Android) to connect with a peer specialist today. 

 

About Our Guest:
Kathleen Totemoff is the Founder/President of iExist, LLC, a company dedicated to saving lives and strengthening communities through innovative approaches and strategic partnerships in changing the trajectory of the opioid epidemic. She has served as an adjunct faculty member at the University of Alaska College of Business and Public Policy for more than a decade and spent more than four years as a Medication-Assisted Treatment Project Director/Grant Manager for a rural Alaska clinic.

Kathleen is also a Certified Health Coach whose work background includes behavioral intervention, residential treatment, rural economic development, and grant writing. She has been actively involved on a variety of boards and coalitions, including the Governor of Alaska’s Advisory Board on Alcoholism and Drug Abuse, the Kenai Peninsula Homelessness Coalition, Nine Star Education and Employment Services, and is a former President of the Kenai Peninsula Reentry Coalition.

She earned her Psychology degree from the University of Alaska Anchorage and completed extensive undergraduate coursework in sociology, human and social services, and criminal justice. She lives with her family on a small homestead with her dog, goats, chickens, geese, rabbits, honeybees, and the occasional moose that wanders into the yard.

As a parent of two special needs children, she has spent the past twelve years studying biomedical interventions for autism and related conditions and recognizes the importance of nutrition and a healthy environment in supporting overall wellness and increasing the efficacy of treatment. Her approach to treating her children’s autism has led her to explore all possibilities when seeking answers for recovery. Kathleen is a strong proponent of incorporating lab testing, nutrition, and technology into the treatment approach for substance use disorders in pursuit of improved identification of underlying causes/factors and enhanced overall well-being.

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Transcript

Whitney Menarcheck (she/her) (00:00)

Technology is everywhere, and we all know that, at this point, it’s an essential component of our lives. And there’s always innovations and something new in the tech space. But awareness of the latest innovations in technology in the substance use space is lacking. Today’s guest, Kathleen Totomoff, the founder and president of iExist, is tackling this problem head on and facilitating awareness of and connection to life -saving technology. Kathleen is a tech -driven recovery advocate who’s helping people and organizations connect to the technology they need while strengthening communities and changing the trajectory of the opioid epidemic. Stay tuned and get ready to be inspired as we reduce the stigma.

 

Whitney Menarcheck (she/her) (01:54)

Hello and welcome to Recovery Conversations. Today’s conversation is with Kathleen Totomoff, the founder and president of iExist, a wonderful company dedicated to saving lives and strengthening communities through innovative approaches and strategic partnerships in changing the trajectory of the opioid epidemic. Kathleen is a tech -driven recovery advocate and has served as an adjunct faculty member at the University of Alaska College of Business and Public Policy for more than a decade and spent more than four years as a medication assisted treatment project director and grant manager for a rural Alaska clinic. Kathleen, thank you so much for joining me today.

 

Kathleen Totemoff (02:35)

Thank you for having me. It’s great to be here.

 

Whitney Menarcheck (she/her) (02:38)

It’s wonderful to have you. What you’re working on is exactly what we’re hoping to spread awareness of, which is innovation and great projects and great work taking place. So can you start off by just telling us in your own words about iExist?

 

Kathleen Totemoff (02:57)

Absolutely. So when I was working at the clinic, we live in Alaska, more rural part of the state, and particularly during COVID, just finding all of those gaps with accessing care and challenges people were having with, you know, who can watch my kids while I go to treatment? Can I afford to go? Capacity being diminished because of the COVID restrictions. So looking for ways around the challenges that people were experiencing. So then I really thought, I wonder if I could just focus on doing that. I wonder if I could start a business where we could just look for who’s having the challenges, who has the solutions, and how can we bridge that gap and bring those two halves together. So that was really how this whole thing was was born and just looking at and trying to create sort of a roadmap to recovery. Wherever people are, we always hear meet people where they are, which is great, but are we anticipating that next step? Are we adequately preparing them to continue along that path that they’ve started? So whether someone is in active use, early stage treatment, early stage recovery, we’re in the maintenance phase. What kinds of technologies, what kinds of supports can we connect people with just to keep them going and headed in the right direction.

 

Whitney Menarcheck (she/her) (04:14)

That’s so solution oriented and not something that I think is really out there other than I exist. There’s a lot of focus on innovation right now. And I know even NIH has different programs about innovation in the substance use field. But there’s a disconnect in many ways between the researchers or the business owners and the people doing the work and the people who are pursuing or in recovery, you know, and needing that. And so you’re building this bridge to really find ways to almost accelerate the implementation as I understand it. Is that kind of along the right lines?

 

Kathleen Totemoff (04:59)

It is because we have our approach like .A .T. is great that’s considered the gold standard but even still we’re losing over 100 ,000 people a year to overdose and more of the families I’m talking to they are less referencing overdose and more so fentanyl poisoning. The drug supply is

more lethal than it’s ever been. So the strategies that people had had to try and make drug use safer or had to mitigate some of those risks, it just takes a tiny spit and it’s getting more potent. You have Narcan, but if what is in your drug supply is not an opioid, Narcan is not going to reverse the part that’s not the opioid. So how do we make this work? So we have our structure, we have our framework, we have what we know can be effective for a lot of people, but we’re missing something. Obviously, there’s if we weren’t missing something, we wouldn’t be losing over a hundred thousand people a year. So we have to accept that, take the ego out of it and look for who has the answers that we need because everybody’s in a different position. Everyone has different needs. They’re all in a different point on that road to recovery. What is out there and how do we connect them? Because we have this great research. So we kind of have an idea of what might work. We have companies who have these solutions, but then we have the people who need them and they don’t know about them or they can’t access them because it’s not covered by insurance. So then one of the other things we do is we work with the nonprofits, we work with tribal entities, we work with people who are eligible for grant funding, work with them to identify, help them apply or just apply for it all on our own and then get the application of them to submit so they can build these things. And so right now I have a pilot project through the Alaska Mental Health Trust Authority and I am forever grateful for their belief in what we’re doing and their support. So we were able to launch a small scale proof of concept project across the state where we can provide different technologies at no cost to people who need them. And that helps meet the need that that person has immediately. And then it helps get the word out that just these particular technologies and online platforms and this approach is effective. And the hope is that more people will say, Hey, that’s a really good idea. How do we get that? How can we, what else is out there? Who can you connect me to? So I love talking. Obviously I like having meetings with people and say, okay, you got this, they need that, can we set up a zoom call or something and I love it.

 

Whitney Menarcheck (she/her) (07:25)

You’re an innovation networker. It’s really cool. You know, I mean, like that is what you’re doing. You are, I’m energized by that. And there’s also so much to unpack with what you just said. And the first thing is you said, let’s leave our egos to the side. And I think that at least as I understood what you were saying, we can get stuck in what we think has always worked.

 

Kathleen Totemoff (07:29)

Thank you.

 

Whitney Menarcheck (she/her) (07:54)

and be resistant to something new. and there are many reasons for that. One, because people don’t like change. another could be because it costs money to implement something new, but there are these technologies out there. And so what are you seeing as far as receptivity to new technologies or, or what barriers are still there that we need to be addressing?

 

Kathleen Totemoff (08:20)

Right. So one of the main barriers is the cost. How do we pay for these things? Since the out of pocket, the ability for people to pay out of pocket for people who need them is typically not there. It’s not covered by insurance. You have to find those grants. And sometimes with the grant funding, it has to be based on FDA approved evidence based practices. And there are a lot of wonderful things that are FDA cleared. So it’s cleared those hurdles. It’s safe there. You can demonstrate its effectiveness. But sometimes the guidance lines are so strict. It might not allow for the adoption of something. So we miss out on a lot of good opportunities and a lot of people are very receptive once they know that it’s out there. Who can I talk to? How can I do this? Which is fantastic, but there has been a lot of pushback unfortunately and sometimes again it’s that that ego piece. I’m not a doctor. I hear that a lot. You didn’t go to medical school. I did. What do you know? I know stuff, you know, and I know people who know more than I do. And that’s the thing. I don’t have all the answers, but I know what’s there and I can provide the information I have. And then I can connect you with the person who can take a really deep dive and really explain the technology in infinite detail. So you can decide whether this is the right thing. Also, it’s not my place to tell you, here’s what you need to do. Here’s what your treatment, your recovery needs to look like. I just want to lay out the options. I kind of envision having a,

 

Whitney Menarcheck (she/her) (09:19)

Yeah.

 

Kathleen Totemoff (09:46)

Menu of sorts. Here’s all the different things that can be helpful for these types of people in these types of situations with this type of substance misuse. You pick what you want and tell me how I can help you get there. So you have this, the ego that I talk about is sometimes that that’s not how we do things. Change is hard. We’re in our groove. We’ve got our rhythm. Don’t upset the apple cart kind of thing. And then you have other folks who take offense to, I have this advanced degree. I have a medical degree. Who do you think you are and why should I listen to you? And there are so many great people who have really good ideas and they work with other people who have the skill sets that they don’t have or they have strengths that they don’t have and you build your people, you build your coalition and you get it done. It’s not about I did this all by myself, I didn’t need anybody’s help, me me me.

 

Whitney Menarcheck (she/her) (10:20)

Yeah.

 

Kathleen Totemoff (10:38)

Who cares? You know, find your people who are going to get it done, bring them on board and figure it out because we are losing too many people. I don’t have the energy or the time to deal with people who are like, I’d rather the problem persist and not get credit for 100 % of addressing it. So it’s like, you’re not the person I want to talk to. Who else do you have that I can sit down and visit with? Because that’s what we need to do. We need to reach out. We need to get out of our little echo chambers. Just talking to the people who agree with us, who do what we do, who are just… I don’t want that. I want to talk… Who has a different idea? Who has a different approach? We might disagree. That’s fine. We’ve lost our ability to disagree and still be okay with each other as people. And that is one of the most disturbing things that I see happening nowadays. But if you talk to people who have different experiences, different perspectives, and you bring it all to… That’s how you get to the good answers. That’s where you find where you need to be is by…talking to everyone and see I might adopt some of your beliefs, you might adopt some of mine, you might not change my mind on anything, but at least be willing to be open and engaged and have those discussions.

 

Whitney Menarcheck (she/her) (11:38)

Grate. That really aligns with one of my personal beliefs or personal philosophies, which is that anyone who feels like they know it all in their field or what have you, that there’s nothing left for them to learn or to try differently, to me, that’s a big sign of burnout and disengagement. And so I’m like you, those are not the people I want to work with because that means that probably actually doing harm. If you have that mindset that the way I’ve done it is going to work forever, because we know that’s not true. We know there isn’t one treatment method that works for everyone. We know that there isn’t one long -term recovery pathway that works for everyone. What we know is that it is piecemeal. Take this from this method. Take this from these types of approaches. And that’s what I’m hearing you’re doing with your connections as well is saying,

hey, I’m not gonna say that this one technology or this one treatment program is gonna be the answer for everyone, regardless of their backgrounds and experiences in X, Y, Z. You’re saying there are so many different technologies out there. What can be the puzzle pieces that we piece together to improve the, to make those options available so that the person, you know, has a sense of authority and also has access to the things that could be the changemaker for them.

 

Kathleen Totemoff (13:17)

Absolutely and like you’re talking about the burnout we have to support our staff. We saw such huge reduction in providers particularly with with COVID the the capacity went down the need went up and we’re still trying to play catch up with these things and especially when you have people working in this field who have lived experience and there are a lot of them people who work primarily in a peer support role. I used to supervise peer support and I had a talk with you know one of the ladies who worked who’s also a friend of mine and she said, it’s hard. You know, some press people look at Pierce, you’re just a paid friend. it’s a do nothing job. And she’s like, that is not, that is not what I do. It is not a do nothing job. I am not a patron. I am there in their worst moment. They are calling and texting me at all hours because they know that I’m the person they can go to. And some of the experiences that they’ve had are my experiences. So I’m having to relive that in some cases be re -traumatized by the experience I’ve had and listening and supporting. And you have that different role. You’re not a clandestine. You can share about your story, you can support them in a different way because you’ve walked that walk and you’ve come out on the other side. So just you simply being there is proof that it’s possible to come out on the other side and that’s powerful and I love that there’s more support for the peer support role and there’s more acceptance of it. But we have to take care of our team. We can’t expect a lot from them if they’re burned out, they’re stressed, their mental health is at risk, they’re using substances or returning to use or if they’re at risk of doing so. So finding those ways to support your team and then meeting people who are in different stages, not just in different stages of their active use or recovery, but where are you in the world right now? We have people who are in corrections. There’s not a lot of correction happening. They’re housed for a period of time and then they’re really the least. The majority of people who are in that situation are in there because of mental health and or substance misuse. If we’re not treating it, we just have a really expensive housing program for a while, then we send them back out. And then where do they go? They’ve probably burned all their bridges. The people who will take them back are the people who are not going to support their recovery, the people that they were using with their back on the street. So then we’re going to maybe steal some things just to meet our survival needs. We set people up to fail whether we realize it or not. So having the ability to connect people in corrections with some of these technologies, have the guardrails on how those parameters so they’re not just surfing the web with their discretion, but where it’s limited for academic purposes so they can find apartments so they can work with their reentry coordinator before

 

Whitney Menarcheck (she/her) (15:42)

Thanks.

 

Kathleen Totemoff (15:58)

Beforehand, get the treatment, get the support, get the treatment lined up for when they leave. So it’s a smooth transition. Who’s going to pick them up when they get released? Where do they go? What do they need? We need to be thinking in those terms. And then for the people who are not housed, how do we get you from where you are to where you are safe, where you have a job, where you have stable housing. It’s a big jump, but we gotta start somewhere. So if you are actively using opioids, and there’s devices that can help with opioid withdrawal management, they’re feeling pretty darn good at the end of the first hour of wearing one of these devices. We can take them to a provider, we can start that process, find that first need that someone has, find a way to make it happen, and go from there.

 

Whitney Menarcheck (she/her) (16:45)

I love that you brought up corrections. That is a population that I am passionate about and technology, in my opinion, can be such a significant tool and resource. Like you said, set people up for that transition. I know in my teaching myself about your company that you have the four pillars, technology, treatment, transitions and recovery. And for those who are listening and don’t know, those transition periods, particularly when someone is leaving incarceration and returning to the community or leaving an inpatient program and returning to the community, those are when they’re at most risk of a fatal overdose. And so what can go with someone? Technology can go with someone from one level to another, from a correctional setting back to the community, probably not going to have a treatment provider in both, right, because of our lovely payment systems, but the technology can go with the person. So we, instead of, like you said, setting someone up for failure and just opening the doors and saying, good luck, instead giving them a tool that is literally in their pocket or on their wrist and giving them something to help increase the chances of success. I think that’s such an important moment there that we can really, truly save lives.

 

Kathleen Totemoff (18:08)

It is. And those, and those transition steps are really, really critical because even if someone has the best treatment possible, and I’ve talked to parents who spared no expense, they sent their kids to the best places that they could find, you know, big price tag, sending them to other states because we’re going to do whatever it takes to save my son or to save my daughter. And that’s what they did. And in many cases, the treatment was phenomenal. They didn’t have any complaints about the treatment itself, but then you complete the program and you just leave. There wasn’t an aftercare program, there wasn’t a follow -up protocol, there was nothing for them to connect, it’s just you’re done. Okay, I’m done with treatment, but it’s not a magic one. I’m not cured of everything. It’s not that those triggering events are not going to happen, that I’m not going to experience some kind of trauma or devastating loss. It is going to make me want to return to what I was doing before. Who can I reach out to? How do I make this work? And you know, from my website, one of my partners is Anobia Behavioral Health, and they have a

unlimited access to all these different online support groups So if you live in an area where there’s not support groups or you live in a really small community and because there’s that stigma there I don’t want people seeing me go to the counselor or going to the AA meeting it might impact my job because of the work that I do or Embarrass my kids at school. We’re still trying to overcome some of those challenges But that allows you to access some support while you’re maybe on a waitlist for treatment if it’s not accessible to you and just anytime we have groups on the weekends too. I mean it’s just about making it accessible. So for people who are coming out of treatment or they’re coming out of corrections, that’s something you can access immediately. And if we could get that into the correctional system, that’s even better. And then you have these wearable devices like Spark Biomedical, they have this barrier with that. You put this all around your ear, it stimulates the different nerves and it brings down your symptoms of opioid withdrawal. That’s such a huge barrier for people. They know they don’t want to keep using. They know the next time they use could have a fatal dose of something in it, but they’re physically dependent and they make the decision, okay, I’m done. But they start feeling so sick and it’s been described to me as the worst flu you’ve ever had times a thousand. It’s miserable and the only way to kind of bring it down is to start using it. Well, you don’t have to. We can set you up with this device and it starts working in about 20 minutes. By the end of the first hour, you’re usually about 80, 85 % of the way there. You know, your appetite’s coming back, the tremors are down, you’ve got clarity. You’re in a position where you can make a good decision and you can continue wearing it for as long as you need. You can dial up or down the level of stimulation. If you have a return to use, you can just put it back on and start over. So there’s things that we can connect you with. There’s virtual care platforms. You know, Interact Lifeline has a lot of really good tools. For providers, there’s things to simplify things. There’s Plan Street for case management, nonprofit, you can keep track of clients and grants. Let your team focus on the things they need to focus on so that they can take care of their people. If you’re spending all your time on paperwork and tracking data and where are we at with our budget, there’s people who need your help. So let’s try and streamline it, make it simple, do what we need to do, but really focus our efforts where it counts, which is on the person who teamed us for help in the first place.

 

Whitney Menarcheck (she/her) (21:39)

Yes, and as a former counselor, that was one of the biggest frustrations was the, and I’m, I, I did not want to say documentation is pointless or anything like that. I understand and appreciate its role. However, it became so burdensome that it would even impact my, my ability to be present in the moment.

 

Kathleen Totemoff (21:54)

Thanks for the show.

 

Whitney Menarcheck (she/her) (22:05)

Right? Because if you’re a counselor who’s behind on notes, it’s hard to be focused and, you know, being present. But that’s a whole other soapbox I could go down. I want to hone in on these benefits that you’ve already started to highlight of integrating technology. I heard that there’s benefits to staff. There’s benefits to the quality of care, to rural accessibility.

 

Kathleen Totemoff (22:16)

you

 

Whitney Menarcheck (she/her) (22:34)

 Also dealing with stigma. Can you talk a little bit more about what you see as kind of the leading benefits of integrating or having a technology integrative approach?

 

Kathleen Totemoff (22:47)

Techno to me is the most perfect solution. I mean nothing’s perfect, but because there are so many different options that address so many different challenges for both the patient supporting the patient’s family, supporting the provider, supporting the administrators. When everyone’s needs are getting met, you can just simply do better. You can do a better job and that’s the whole point of it. So when there’s all these different things, maybe my issue is with alcohol, maybe it’s with opioids, maybe I have depression. There’s so many different options.

Different things for all of those different concerns. So it’s almost limitless and because we are just so technologically driven nowadays that the pace of innovation it’s really hard to keep up with which is exciting because when you think you know all the things that are out there you realize you’re just kind of scratching the surface there’s so much and there’s more things coming up all the time and it’s really encouraging because if you haven’t found the thing or more likely the combination of things that are really going to help you you don’t need to lose hope because there’s a lot of other things. You just haven’t found the right combination yet. So that’s really the goal is to just find the solutions, let people know. And I tell people, this is just what I know about. There’s a whole lot more. So if you need something and what I’ve shared with you doesn’t address your need or concern, let me know what you need and I’ll get on it. I’ve spent a lot of quality time on the internet doing research over years. I’ve gotten pretty good at finding things andit’s easier to find and there’s a lot of newer innovations coming up. There’s Fen Block, Neil Jackson out in Virginia invented this, and it’s incredible. So he went through some medical issues and became dependent on the fentanyl patch. And he thought, you know, there’s gotta be an easier way to get off of this stuff. So he developed this material that is a barrier between your skin and the fentanyl patch. So the person can kind of self taper, cut away at that material. So they’re getting less and less of the fentanyl over time, that’s going through the FDA process. That’s very exciting. Interact Lifeline is working on an application called Lifeline Connect. And people can learn more about that by going to their website. And it’s still under development. But what it’s going to do is it’s an application that will sync up with a smartwatch, like a Fitbit or something like that. And it tracks your vitals. And so it will know if you’re experiencing, or if the wearer is experiencing likely an overdose. And it will send an alert to that person’s personal emergency contact list, hey, so -and -so might be experiencing overdose, they can indicate, yep, I can get to them in time, or no, I can’t. And it will actually track that person’s location and can send an EMS directly to where that person is. The things that people are cut and the tragic part is a lot of these things are born out of people’s own experiences. You know, they’ve lost their child. They’ve gone through this and they’re thinking what could have helped, what could have saved my son or my daughter. And they just put their whole heart and soul into this and they’re finding those answers so other parents don’t have to go through that. And they’re very willing to share their stories. They’re willing to share what they know. They’re willing to help in any way they can in connecting you with other people. It’s a really great community that I wasn’t aware of until I started doing this work and I’ve just been very fortunate and very blessed to just meet the people that I have these last five or six years. Some of my favorite people I’ve just met in the last few years who are just completely selfless and focused on just what can I do to help the next person and willing to work together and that it’s great to see that.

 

Whitney Menarcheck (she/her) (26:31)

Yeah. Now, when you were talking about that, it made me think you’ve already mentioned stigma as technology can be a solution in a way to some stigmas if you don’t want to be seen going to meetings or appointments. But then also there’s still stigma rampantly. And I’m curious, from my perspective, behavioral health and particularly substance use addiction work Is so behind in innovation. And there’s a number of reasons for that, a lot of it having to do with funding. But another one is stigma. People weren’t interested in finding innovative solutions until it impacted them. And so we have, technology has been integrated into physical health for so long. It’s well received and things like that, but we’re still hitting that wall. Can you tell me what role stigma plays in innovation.

 

Kathleen Totemoff (27:34)

Yeah, having it’s just new to a lot of people. And you’re right, we’ve been using technology for physical health for a long time. And during the pandemic, that really did open the doors for people being more receptive because they had to. We need to expand telehealth because people can’t come into the clinic. Things are shut down. We don’t have the staff. We don’t have the capacity. But just finding those different ways to make things more accessible. But you have a lot of challenges with people who they’re just not they’re just not aware of it and getting people on board can be a challenge but finding the ways where you can say okay this is my situation maybe someone is a single mom and they can’t go to their appointment there’s no one to watch my kids or I have a job and I only have an hour during my lunch break how do I get there?

There’s different solutions that we have available. And now with the substance misuse, unfortunately, we have reached a point where almost nobody is untouched by this anymore.

There’s different pockets of people. There’s people who have cancer. Both of my kids have autism. There’s people who have diabetes. There’s all these different things. And the less common it is, the harder it is to find support because not a lot of people can identify with your situation and the things that you’ve gone through. But when you’re losing that many people per year, and it’s been going on for a long time, you’d be hard pressed to find anybody. Nowadays who doesn’t at least know of someone who has died from an overdose or fentanyl poisoning or hasn’t gone to treatment or hasn’t hasn’t gone through that for the long I didn’t know anybody who as far as I knew didn’t even know anybody who used drugs and now almost every time you talk to somebody and this topic comes up. Yeah, my son, my brother, my sister, my whoever it is and it touches everybody. So now I would hope we’re at a point where people can just say this is a priority and the way we politicize everything. There’s a time and a place for that, but when you have something that affects the whole country, and it doesn’t matter, it’s not a race issue, it’s not a socioeconomic status issue, it’s not a gender issue, it’s a human issue and it affects everybody. So we really have to do all we can to figure out how do we really begin to address this in a meaningful way because when the overdose and the fentanyl poisonings and the deaths are going up every single year, we are missing some. We’re probably missing a lot of something and we need to just be willing to talk and open our eyes and say how can we bridge this gap because we can’t keep allowing people to fall through the cracks. There’s a lot of great things that we offer. But again, if we don’t anticipate those transitional steps, we don’t connect them to the next thing they’re going to need. Everything they’ve done up to that point could be perfect. The best treatment, the best providers, the best of everything. But if they’re just kind of left on their own and something happens and they don’t know where to go and there’s nothing for them to hang on to, they’re going to fall right through that crack and we can lose them. So we’ve got to figure out how to build that safety net around so we can continue to support them all the way through maintaining that long -term recovery.

 

Whitney Menarcheck (she/her) (31:10)

It’s amazing how you are looking at the entire journey that an individual experiences. And it’s from the moment, you know, maybe they’re pre -contemplative if you go by the stages of change, all the way through to sustaining recovery. You’re looking at how to support that person, how to connect them to the thing that they need. And hopefully people are hearing that. There are all of these different innovations, I’m confusing that word, but that’s what it is. These are new technologies, new ideas that are there. And to highlight something you said earlier, just because a technology is recommended or it worked for someone else doesn’t mean you’re a failure if it doesn’t work for you. It’s like when someone asks me what to look for in a counselor or something like that, you’re allowed to say, you know what, not a good fit. Let’s try the next person or let’s try the next technology or solution, find what works and support people in having that freedom to find what works instead of prescribing one certain solution, technology, approach, what have you. And it sounds like there really are so many out there that people are not, I know I’m certainly not aware, I learned about the new one from you today. And so we need to keep getting this awareness out there and not let stigma be the reason why people aren’t accessing life -saving technology.

 

Kathleen Totemoff (32:45)

Absolutely, and we talked so much about the importance of diversity and inclusion and all of these things But it’s interesting to me when then when the focus is on a group someone who has a group identity for lack of a better term There’s there’s somehow this idea that every member of that group is gonna need the same thing is gonna think the same thing and I believe the same thing and I’ve seen people be completely ostracized because they dared disagree with members of their group it’s like We’re all different, we’re all individual. And what I tell people too is like both of my kids are autistic. It looks different in both of them. It’s the same diagnosis, it’s the same label, but it presents itself differently. There’s different levels of ability, there’s different tolerance levels to different stimuli and other things. So just because you have the same diagnosis as someone doesn’t mean that it presents the same way, that you feel it the same, that you need the same things. And it’s okay to remember that people are individuals just because you have a diagnosis or some kind of label, you’re not obligated to follow a specific course because for people like you, that’s what we do. This is what we offer. I don’t care what you offer. I care about what I need. And if you’re not going to help me, I’m going to go find somebody who will. And I think we need to really empower people to make those decisions. We’ve been so conditioned to just listen to the experts, listen to your doctor. And some of us have horror stories because we did listen to the experts or to our providers. And there are many wonderful providers out there. I’m not trying to demonize you or anybody but if you’re not getting the answers you need you’re not getting the support you’re not getting the results that you need and deserve to have pick up and go find somebody who’s going to get you where you need to go. You’re not obligated to stay with the first person you had an appointment with. If they’re not supporting you, they’re not willing to tell you what’s out there. And if you ask them, if I’ve talked to people, it’s like, yeah, I talked to my provider about this thing and they said that that wouldn’t help me. Well, how do they know? Have they heard of it before? Well, no. If they’ve never heard of it before, how could they just disregard it out of hand? Here’s their website. Here’s the person I know. Talk to them.

 

Whitney Menarcheck (she/her) (34:51)

Right.

 

Kathleen Totemoff (34:54)

to you decide and if your provider if you’re interested and you think it’s a good fit and your provider does it I would encourage you talk to someone else maybe you need a new provider and not to say they’re not a good doctor but if this is a course you want to pursue and they’re not supportive you can go somewhere else and it’s okay to do that and I think we need to get back to a place where it’s like when you see a provider they’re working for you. You know they’re providing a service to you, you’re paying them or your insurance is paying them, they’re there to serve you and meet your needs and if they’re not doing it pick up and go somewhere else.

 

Whitney Menarcheck (she/her) (35:30)

Yeah, that’s great. That is such a strong message. Autonomy is essential and it’s been squashed for so long. So hopefully people heard exactly what you said. And let’s just keep helping people do that. As we start to wrap up here and before I ask you my final question, There’s so much information that you have. How do people connect with you? If they want to learn more, if they want to follow what you’re up to, the organizations and companies you’re working with, where can they go?

 

Kathleen Totemoff (36:09)

Absolutely, they can go to my website, iexist .com, or they can just send me an email at Kathleen, K -A -T -H -L -E -E -N, at iexistglobal .com. I’m also on LinkedIn. I’m the only person on there with this name, so I’m really easy to find. And I’m happy to connect them with whoever they want to talk to, provide any information that they need. I don’t charge people when they come for information. Just anybody you need to be connected to, any information you need.

It’s yours. So that was very important to me from the beginning that I don’t get paid for people just coming to get information that if you need it, I will give you everything I’ve got.

 

Whitney Menarcheck (she/her) (36:51)

Thank you on behalf of everyone because that’s amazing. And I just want to tell everyone, go to iExistGlobal .com. There’s so much information and resources and I’m guessing it’s just gonna continue growing with all of the information there. It’s really a great resource. And so with that, I’d like to move on to my final question for you. If people take away one thing from this really incredible discussion, What would you like it to be?

 

Kathleen Totemoff (37:23)

I would say first and foremost to be kind. We see a lot of people just treating other people for whatever reason. There is no reason for it. Be kind to people. You don’t know what they’re going through now, what they’ve gone through, what led them to where they are. It’s very easy to pass judgment on someone. Why can’t you get your life together? Why can’t you get a job? Why can’t you stay clean? Whatever it is, you have no idea. You have no idea. And they’re not obligated to tell you either. But be kind to people and don’t give up hope because there are too many people I’ve talked to who have just been through the ring or they have been through things that will make you cry and here they are and they’re the most amazing people and they are just dedicating their lives to helping others and that’s their whole focus and they said you know I what I went through was hard but if I hadn’t gone through those things I wouldn’t have that understanding of what this person’s going through I wouldn’t have the same drive I wouldn’t have the same the same knowledge I needed to go through that to be able to do this so it was worth it I got a second chance I want other people to have a second chance. So whatever you’re going through, it’s not over yet. You know, if you’re still here, you’ve got today and reach out to whoever you need to. Don’t lose hope. There’s people who can help you. If you’re interested in technologies, let me know what you need. I respond to emails as quickly as I can. I will get back to you. I will put you in touch with whoever I think is a good fit. And if it’s not a good fit, let me know and we’ll find something else.

 

Whitney Menarcheck (she/her) (38:59)

Wonderful. Well, Kathleen, thank you so much for taking the time to speak with me today, for sharing your wealth of knowledge in this space. I think everyone learned something new and reinforced that there are resources and solutions and different things out there. If you haven’t found it yet, it doesn’t mean it doesn’t exist. You just haven’t found it yet. And you certainly reinforced that for all of us today. So thank you again for joining.

 

Kathleen Totemoff (39:29)

Thank you so much for having me.

 

Whitney Menarcheck (she/her) (39:33)

And everybody, if you enjoyed this conversation like I did, please be sure to share it with all those in your network so that we can continue fighting stigma and raising up the voices of those who are doing really incredible work to serve individuals who are experiencing mental health, substance use, any of those challenges in life. Thank you all for listening.

Kathleen Totemoff: Connecting People and Innovation | Reduce The Stigma This episode of Reduce The Stigma features Kathleen Totomoff of iExist, a tech-focused organization that aims to address substance use disorders and recovery through innovative technological solutions. Kathleen discusses how iExist bridges the gap between those struggling with addiction and the tech tools available to […]

Continue reading "Leveraging Technology for Recovery"
A cartoon woman with two thumbs up and a big smile with a speech bubble that says "Oh yeah, I'm great! No, I don't need any help." while there is also a though bubble with a picture of the same woman looking sad and crying.

The Art of Asking for Help

Why is it so hard to ask for help?

What is it that makes asking for help, or even just admitting we need help, so hard? There’s messaging everywhere we look encouraging us to reach out, ask for help, seek support. Despite all these encouragements, we, as a society overall, still struggle with asking for help. Why is that?

Expectations

This is nothing new – it’s almost a well-known fact that the act of asking for help is believed to be seen as weakness, failure, insufficiency. But where do those beliefs come from? For some, the message that asking for help is “weak” is ingrained during childhood through familial messaging, responses, and stated expectations. It could take the stereotypical forms of a young boy being told that he needs to “toughen up” or the young girl whose feelings are dismissed. Maybe it wasn’t just the family, but the culture that emphasized this messaging that you need to be self-reliant at all times.

When these messages are heard frequently throughout childhood, especially when they come from someone we admire or who holds authority, they become deeply entrenched in our sense of self and how to cope. But difficulty asking for help is not just a long-lasting impact of childhood, it also is influenced by who we are and want to be as adults.

Vulnerability

Asking for help, admitting that we need support, requires us to be vulnerable, which isn’t easy. In fact, it’s downright scary for most of us to be vulnerable with those closest to us and who we trust the most, let alone colleagues or those we don’t know as well. Pride and ego can have quite a grasp of us, and vulnerability goes against all that they seek – esteem, self-reliance, stereotypical success. In a way, then, when we are able to ask for help, when we are able to be vulnerable, we are being courageous. Still, though, we struggle.

Lacking Awareness of Need for Help

Let’s imagine that you are willing to ask for help, that you see asking for help as a strength, not a weakness. What could interfere with your ability to seek that support? Self-awareness. Sometimes, we get so caught up in an idea, a dream, a commitment, a desired accomplishment, that we lose touch with what we are capable of doing. Now this incapability does not always mean lack of skills, sometimes it’s lack of emotional and mental energy, time, or resources. Sometimes, our denial of needing help is because we have rooted our identity in doing something or being a certain way. Is that a bad thing? Is it “wrong” to continue pushing forward to prove to ourselves or others we can do it?

The Harm of NOT Asking for Help

When we continue to push ourselves beyond our mental, emotional, physical, or spiritual abilities we are harming our entire self. We are causing significant stress on our mind and body, likely depriving ourselves of essential sleep and food, maybe even disregarding our spiritual needs. This will all likely culminate in a state of despair and self-critique. The ego that pushed you to keep going? It will become your biggest critique. This can lead to further self-doubt and shame, likely impacting the next time you are in need of help. 

Benefits of Asking for Help

On the flip side, when you do ask for help, how often is it actually met with judgment? I’m willing to bet it’s less than you expect. Asking for help opens up a stream of opportunities. These opportunities can be in the form of learning something new, gaining a connection to someone else, or even modeling for another person that it’s OK to ask for help. When we ask for help, we give ourselves permission to be the imperfect humans we are. When we ask for help, we actually increase, not decrease, the chances of our success and happiness. Physically, emotionally, mentally and spiritually it’s as if a weight has been lifted off our shoulders and we are receiving support carrying the burden, obstacle, or challenge. We are naturally social beings who are meant to connect with others, to work together. Let’s give ourselves permission to ask for help.

When to Ask for Help

Each person has their own warning signs that their stress and emotional wellbeing is in a state of concern. The best thing you can do is to tune in to your body and mind’s signals that you are approaching that state of distress. What are your signs? Maybe it’s skipping meals, sleeping less (or more), or being less patient than usual. Perhaps your warning signs are that you become overly sarcastic or pessimistic, or perhaps you withdraw and begin to perceive offers of support as attacks against you. If you can identify these warning signs, you can intentionally be on the lookout for their arrival and take action (the action of asking for help) to avoid being overwhelmed and in a state of distress.

How to Ask for Help

First, start with giving yourself permission to ask for help. It will be a lot harder if you are upset with yourself. Instead, tell yourself and believe that it’s OK and even encouraged to ask for help. Once you’ve done that, here are some other ways to effectively ask for help:

Identify the Right Person: Determine who is best to provide the help you need. This could be a friend, family member, colleague, or professional. Consider their expertise, availability, and willingness to assist. Think about your experience with them and who you feel comfortable with.

Be Specific: Clearly articulate what you need help with. Vague requests can lead to misunderstandings and ineffective assistance. For example, instead of saying, “I need help with my project,” say, “I need help organizing the data for my project by Friday.”

Be Honest: Share your reasons for needing help. Honesty fosters trust and understanding. If you’re struggling with a task, explain the challenges you’re facing. If it’s an emotional issue, share your feelings openly to the extent you feel comfortable and it is safe to do so.

Express Gratitude: Acknowledge the person’s willingness to help and express your appreciation. Gratitude not only strengthens your relationship but also makes the person feel valued and respected. A simple thank you can go a long way.

Offer Help in Return: If appropriate, offer to help in return. This creates a mutually supportive dynamic and shows that you value the other person’s time and effort. For instance, you could say, “Thank you for helping me with this report. If you ever need assistance with graphic design, I’d be happy to help.”

Follow Up: After receiving help, provide feedback on how their assistance benefited you. This closes the loop and shows that you value their contribution. It also encourages future cooperation.

Conclusion

Asking for help is a vital skill that can significantly enhance your personal and professional life. While it may be challenging due to fears of vulnerability or judgment, recognizing when and how to seek assistance is essential for overall well-being. By identifying the right person, being specific and honest about your needs, expressing gratitude, and offering reciprocity, you can effectively communicate your need for help. Remember, seeking help is a sign of strength and self-awareness, not weakness. It demonstrates your commitment to personal growth and resilience, ultimately leading to a more balanced and fulfilling life.

Need someone to talk to?

We all need help at some point. If this is a time you’re looking for someone to help you, head to straightupcare.org and connect with a peer specialist. 

Why is it so hard to ask for help? What is it that makes asking for help, or even just admitting we need help, so hard? There’s messaging everywhere we look encouraging us to reach out, ask for help, seek support. Despite all these encouragements, we, as a society overall, still struggle with asking for […]

Continue reading "The Art of Asking for Help"
Reduce the Stigma cover image with Raven Ariola, co-creator of the Advocacy Against Stigma Conference. Raven is a man who has glasses and dark hair pulled back into a ponytail. He is wearing a black shirt and what appears to be a white lab coat.

Voices from the Advocacy Against Stigma Conference

Raven Ariola
Whenever it comes to even our own facets of identity and how we identify, self stigma is wrapped into that. So being confident in who you are with yourself.

The Advocacy Against Stigma Conference tackles critical issues surrounding stigmatized life experiences and the barriers to healing created by pervasive stigma. This unique conference brings together individuals with lived experience, medical professionals, and advocates for a powerful exchange of stories and perspectives.

Explores the conference’s impact through a conversation with Raven Areola, co-creator of the event. We’ll delve into the importance of dismantling stereotypes, the role of lived experience in informing better treatment approaches, and the power of storytelling in fostering compassion and building a more inclusive community.

Click here for the episode’s full transcript.

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Transcript

Whitney Menarcheck (00:01)

I attended the second annual Advocacy Against Stigma Conference in Pittsburgh, Pennsylvania. And I did something a little different. I met a few people and asked them to record a message, whatever they would like to say to help reduce stigma. And so I’m going to share those with you. And then we’re going to speak with Raven, one of the creators and leaders of the Advocacy Against Stigma Conference. And I’m really excited to also share that

 

Right after we finished our interview, I got word from Raven that the non -profit that he and his colleagues have been working on creating has been finalized. This is exciting news and we’re so happy for Raven, his colleagues, and what this means as we all continue fighting stigma.

 

Karley (01:58)

Okay, can you say your name? Sure, my name is Karley Snyder. Karley, what brings you to the conference today? So I’m here with the Students for Sensible Drug Policy Pittsburgh Community Chapter and we empower young people to do advocacy work both at their local community as well as the federal level.

 

So much of our work is around drug education, but there’s still unfortunately so much stigma tied around drug education, tied around mental health crisis, etc. So just one step at a time, having one conversation at a time to try to bridge that gap. That’s great. And you have been to a few conferences lately. You were just telling me off the mic.

 

Can you share something that kind of opened your mind that you learned about this week or had you thinking about things a little differently? Yeah, absolutely. So the conference I was at was NAMI’s Keystone Wellness Conference in Harrisburg.

 

And this was mainly a mental health conference, but the individual I met, she mentioned that she was in recovery. I automatically think drug and alcohol, just by that framing in general of those word choices. And just the nuance that she shared, no, that was from mental health issues. And she was in recovery from her traumatic experiences. And that just made my perspective shift slightly of, I may even have stigma of just the word recovery and how that directly correlates to drug and alcohol.

 

nothing maliciously intended on my end, but we’re also recovering from trauma. We’re recovering from mental health issues, rather. And it’s much more nuanced than even within the stigma -related space in the conference we’re here at today. Absolutely. And what is your message? What would you love everyone to hear as we reduce stigma?

 

Just be empathetic. We’re all human beings and it can get caught up in buzzwords and grand dollars and clinical outcomes, all that good stuff. Absolutely. But at the end of the day, we’re human beings and just one human relation, one hug, one handshake can be really powerful. Thank you so much. Absolutely.

 

Howard (04:03)

Can you tell me your name? Howard. Howard. Howard, what brought you to the conference today? I heard it was a lot of information that could be helpful. That’s good. So I figured I’d take a chance and see what can be helpful to me. Alright. And what do you want people to know about stigma or about anything? The thing I want them to know about stigma is that no matter what you do, someone has something to say about it.

 

You should be comfortable in who you are, your decisions. And whoever don’t like it will eventually come around. And if they don’t, as long as you’re secure within yourself, nothing else matters. You only live once. Wonderful. Anything else you’d like to share with us? Just that I hope people don’t listen to these negative words, you know?

 

Maggie (04:58)

So what brought you to this advocacy against stigma event today? I actually heard about it from someone that’s in a different organization. And since I work with Gateway Rehab, I’m pretty new in my position. Although I’ve been there for a couple of years now, I am a CRS that goes into hospitals, jails, and the community. And it’s very near and dear to my heart because I struggled with addiction for over 10 years. My brother’s still an active addiction. And so…

 

It’s really important to me. Well, congratulations because to be a CRS means that you have gone through recovery and the training and that’s amazing and we need more CRS. What is your message that everyone needs to know and why we need to reduce the stigma? That you are not alone. There’s so much help out there for individuals, for mental health, for drug and alcohol needs. There is so much help and so many others out there that are just like you.

 

Great. Thank you so much. Thank you.

 

Julie Butler (05:59)

And can you introduce yourself please? Hi, my name is Julie Brewer. Julie, what brings you to the stigma conference today? I am a person with legit experience in recovery. And I also work professionally in a field, in the treatment field. But what I want people to know

 

for real is that people who are in recovery and people with lived experience with criminal justice issues, they are defined regularly by the worst thing they’ve ever done. So take a second, think about the worst thing you’ve ever done.

 

How would you like to explain that on every job interview you go on? How would you like to explain that on numerous pieces of paper throughout a year that you have to fill out? That’s what stigma is, and that’s what it does to people. And I just want to let folks know that you don’t have to be defined by that, and society probably will continue to do that until we advocate.

 

and get policies in place that protect people with those experiences. But until we do, just try to be kind, realize everybody’s fighting a battle that you don’t know anything about, and be nice to each other. That’s it. Thanks. Thank you, Julie.

 

Whitney (07:28)

Today’s conversation is with Raven Areola, a medical cannabis expert and also one of the creators of the Advocacy Against Stigma Conference, an inspiring day of collaborative learning and knowledge sharing focused on breaking down barriers, challenging stereotypes, and fostering an environment that is inclusive, empathetic, and stigma free. Raven, thank you so much for joining me today.

 

Raven (07:52)

Thank you so much for having me Whitney. I mean, it was a pleasure to meet you at the Advocacy Against Stigma Conference and being able to have straight up care there was a real pleasure. So it’s been really great to continue the conversation and keep it going.

 

Whitney (08:02)

Thank you. Yes, I have attended both years of the conference and I’ve seen the evolution and I love it. It really, you know, it’s talking, you talk about like having this connection in the collaborative learning and it felt like a community effort. So it’s a great event and thank you for putting it on.

 

Raven (08:23)

Yeah, thank you. And that’s the kind of what I was really going for is kind of feeling that feeling of community, especially it being right now it’s only five hours. My goal is to extend it out to maybe seven to eight hours. But even in that five hours, there’s a lot of really dedicated discussion. There’s a lot of really great resource tables to go visit. But the biggest thing is we all have lunch together. We’re all jamming out to the disco music together. We’re all watching these presentations together. And I find that that can be the driving factor for a lot of really meaningful conversations in the future.

 

And I always tell people whenever they’re invited to the conversation, invited to the conference, is that of course we want them there for the day of, but the goal is to really give birth to something that’s going to be long lasting and collaborative efforts that are going to live way beyond the conference.

 

Whitney (09:08)

Okay, interesting. So before we get into the future, I’d like to go backwards into the past and you know, it’s a relatively new two years, two successful years. Can you take us back to 2022, 2021 when this idea started? What led you to go down this path?

 

Raven (09:30)

Yeah, great question. so back in 2022, I was working, I’m still working within the medical cannabis space. at that time I was working more hands on with like in the industry industry. Right now I focus more on like education and that kind of stuff. But at that point I was working with my colleague, Michael Palladini, who also puts on the conference with me and we were sitting outside, we were discussing all the things that kind of get in the way of people just getting the help they need. And

 

one of the biggest things is stigma. At that time, there was a, I don’t remember if we were discussing the article, but I guarantee it was fresh in both of our minds, but there was an article that was recently published in 2022 indicating that a study showed that the results of stigma and stigma and then also being stigmatized can oftentimes be more harmful than the actual treatment itself whenever we’re talking about mental health. So that, I believe,

 

the numbers were 400 patients across 30 countries. And it was 80 % of patients said that the stigma itself was more harmful than the actual depression or the actual mental health condition that they were seeking treatment for. And that even though if we weren’t talking about that directly, it was definitely fresh in both of our minds. And we were talking about stigma being one of these large intangible hydro like monsters, like how do you really get a hold of something like stigma and address it practically?

 

And one of the biggest things, honestly, just talking, just being able to bridge that conversation and pull these things out of the darkness so we can start seeing people for who they really are. And that kind of stuff especially is especially true in like the peer support world and the peer specialist world where we’ve broken down a lot of barriers to be able to see people for who they really are. But unfortunately, there’s so many other types of stigma that can fall into the cracks. And that’s where I feel that the conference is a great platform to

 

invite people of all kinds of different places that have been stigmatized, but not only to lament, but to also cross the barriers between groups that might not necessarily be communicating that that’s where the growth currently happened. So for example, so I know I’m, I know I’m ranting. I find that I’m ranting. for example, groups like, dance safe or harm reduction, more like pro drug groups with alongside more traditional addiction, healthcare, abstinence type groups.

 

Whitney (11:43)

No, no, no, this is great.

 

Right?

 

Raven (11:55)

understanding that meeting patients where they’re at is exactly that meeting where they’re at and not expecting them to be anywhere else. And I think that that’s a big part of how we can reduce stigma is just by bridging all the communities that are all doing great work, showing and showcasing the work they’re doing to actually break down the stigma and then develop the relationships between them for the sake of the patients. So that’s really what it came down to is me and Mike were just talking about how the heck can we actually reduce stigma.

 

And we determined that one of the biggest thing is just getting all of these people who were doing great work in a room together so we can really get a handle on it ourselves. I’m glad that you were there for both conferences because the first one, I’ll admit that was my first conference I’ve ever done period. So, I mean, so I mean, I was a little bit nervous on who we want and everything. And I was very grateful that it was sponsored by the Allegated County Department of Health. So we were able to get some local resources and everything there. Second one.

 

Whitney (12:37)

I wouldn’t have known.

 

Raven (12:50)

we were able to be a little bit more creative on who we could pull from our resource tables to actually provide the community what would be most beneficial. But it’s nice that you’ve been able to see both of those kind of evolve because you can see that there’s an evolving dialogue that comes along with the conference. The first one is more about getting everyone in the same room, addressing stigma as it is. Sorry, this is my kitty. Addressing stigma as it is. And then the second one is more focused on what kind of solutions can we bring to the table? So we were showcasing like

 

Whitney (13:20)

Yes.

 

Raven (13:20)

your guys’ organization would stop the stigma and straight up care, how are organizations out there really getting a handle on stigma? And I think that’s a great way to really kind of motivate that growth.

 

Whitney (13:32)

That’s exactly what we need, right? We all can easily fall into our silos. And you did have such an array of backgrounds with lived experience, and then there’s professionals in the room, the two ends of the spectrum of pro drug or safe use, and then at the other end, the abstinence base. And we’d be lying if we didn’t say there was stigma.

 

amongst ourselves, right? I think my way or my approach is the best way. I don’t like that other way. And that causes barriers too. And I think you’re hitting on something really important, which is what are we, those of us who have the best intentions, what are we doing that we’re not realizing are also creating barriers? So putting us all in that room together, getting us talking and connecting, that’s when really great things happen.

 

Raven (14:31)

Exactly. That’s my goal. That’s my goal. And what’s also nice is we can start to see how that dialogue is evolving and certain ideas are coming up. For example, with this year, a lot of the speeches and a lot of the conversations that we’re having, we were starting to understand the impact that language really builds the reality that we live in. And so much more whenever we’re talking about patient outcomes and the way that stigma can really make people feel less than a person, where they’re not feeling that they’re being seen for who they truly are.

 

Whitney (14:49)

Yes.

 

Raven (15:01)

Just even that, just being able to have so many people in the room understanding where the language can provide that is a great kind of learning point, a springboard for where we can really start to induce that change.

 

Whitney (15:13)

Yeah, absolutely. And what really struck me because I was talking to people, I had people coming up to the straight -up care table, was there was actually an individual who is unhoused. And I asked him, what brought you to the conference today? Because typically, conferences are kind of cold, you know, very…

 

academics oriented and things like that. And he said, I heard there will be resources. And I thought, how amazing because that like to have someone come to a conference who maybe was, that was never the intended audience, but why not? Let’s get again, the people who are directly benefiting from services or in need of services in the rooms as well. And I just was talking to him and I just thought it was just so amazing that you’re

 

breaking down stigma right there by giving people a safe place to come and access those resources.

 

Raven (16:17)

No, absolutely. And I’m really glad that you were able to like see that and that they, people were there. They kind of fulfilled that because that was a big, big pain point for me when building out this conference is that we’re inviting all these great organizations, but there’s two main groups that I need to have in the room with these people. One, those who need the resources, those who are unhoused, those who are struggling with substance abuse, those who are feeling stigmatized and struggling with mental health. And then also

 

may be providers who aren’t necessarily as in the know, you know what I mean? Like those who just generally might accidentally be stigmatizing their patients. So those are the two groups that I very greatly invite to the conference.

 

Whitney (16:57)

Yeah, no, that’s great. It’s all about just hearing those different voices, having that talking. The lunch component is very interactive, but also, you know, I saw the presentations were, there was such heart, and I don’t even know if I want to call them presentations as much as they were just sharing, perspective sharing.

 

Rachel Schuster, who talks a lot about language, who we’ve actually had on the podcast as well. And then we heard about the first LGBTQ plus recovery house that’s coming into Western PA. In the experience of Jules Mackenzie, who in having to go through treatment programs that were not respectful and inclusive of who they were. And that is the ultimate way.

 

One of the ultimate ways to address stigma is just to give light to those experiences and I appreciated that. That you brought people with that perspective in. I’ll say many times to anyone who is willing to sit through hearing me say it, but I hate going to conferences and hearing a doctor present or a counselor or whomever and I’m including me, I’ve been one of them. Why?

 

Why are we continuously putting those people in front of everyone? Why aren’t we listening to the population that is in need or who has benefited?

 

Raven (18:26)

Exactly. And that’s a big thing that’s important to me is elevating those lived experiences as well. So we can understand from those perspectives, how we can make this whole infrastructure better for everybody. And like you mentioned, kind of having doctors and other, other professionals on a platform like that is definitely incredibly helpful. I loved having the level of research that we had as far as preventing stigma and even worldwide stigma. But I find that having those lived experiences, that’s really

 

Whitney (18:48)

Yes.

 

Raven (18:54)

I find that a lot of the time the FDA, the DEA, they need a lot of data to be able to kind of substantiate different types of clinical trials. But people, we need stories to be able to really understand other people.

 

Whitney (19:06)

Yes, yes. And I can easily go down a rabbit hole about data. I value it. I appreciate it. I see. Right. And it’s it can take too long sometimes to have an impact. And so it’s through those stories. And it’s by talking to someone that says, you know, I need this different thing than what you’re expecting. I mean, because

 

Raven (19:15)

yeah, it’s worldly important, absolutely important.

 

Whitney (19:34)

The national survey says X. No, what I actually need is Y. Okay, well let’s do that. Why are we wasting time trying to shove something down somebody’s throat if that’s not what they really need? We’re not hearing them.

 

Raven (19:49)

No, exactly. Yeah, exactly. And I think that that unfortunately starts whenever people were very young. That starts whenever you’re born, I feel like. Those people start projecting what they want to hear, when what they want to treat with, and unfortunately instead of who you actually are. And I think a big part of being able to provide that platform for those lived experiences is so we can shy away from that kind of preaching to the choir kind of idea. So where if we do have doctors and other healthcare professionals up there one after another, it’s great. But like you said, it can…

 

Whitney (19:55)

Yeah.

 

Raven (20:18)

get really dry at a conference whenever it’s just, well, yeah, that’s what we’re doing already one after another. So that’s why it’s really important to bring a bunch of really innovative ideas along with lived experience onto the platform.

 

Whitney (20:30)

Yes, yes. And then the connection piece, and maybe this is where we go into talking about the future, right? I imagine you’re already planning for 2025. And what else is in store for the advocacy against stigma movement that you are leading?

 

Raven (20:52)

Yeah, I’m glad that you asked. So Mike and I, we’ve, he’s taken the reins on pushing advocacy against stigma as a nonprofit. So hopefully next time that we discuss in our first few meetings here, that will be a nonprofit organization. Last year, we were able to go through John’s Echoes and Jade Wellness, Jade Wellness, as you know, for our, our financial transparency and going through the 501 3C, but having our own will definitely open a lot of doorways to be able to really kind of hopefully destroy some of those stigmas on the way of patient care.

 

Whitney (21:05)

How exciting.

 

Raven (21:21)

And a big one would be able to offer more platform, more space for those that are interested in the conference.

 

Whitney (21:28)

That’s incredible. So you’re becoming a nonprofit, which is just congratulations. There’s certainly a need. I don’t, I mean, we could have thousands of work, of people, organizations in one area working on Sigma and it wouldn’t be enough. So I’m excited that you’re there. You’re bringing your perspective. And that makes me happy that, that we’re going to continue having this conference because it’s a great, you’re really, you’re doing a lot of,

 

Raven (21:34)

thank you.

 

Exactly.

 

Whitney (21:57)

great things. And what else are you seeing as advocacy against stigma kind of takes on that nonprofit? There’s going to be the conference. Where else are we going to start seeing your work popping up?

 

Raven (22:07)

Yeah.

 

Yeah, that’s actually a really great question. I’m glad you asked. I would love to be able to extend it out to more like continuing education credits. I think that would be a big point of education for healthcare professionals, pharmacists, even those in the judiciary system or justice system, like being able to provide education from a more compassionate standpoint, I think it’d be a very big thing.

 

Whitney (22:18)

Okay.

 

Mm -hmm.

 

Raven (22:34)

Also letting people know from those worlds what’s actually out there and available. If it’s not available in your community, what are other communities doing to address certain issues like mental health or substance abuse or even things like age stigma, things that, like I said, fall through the cracks.

 

Whitney (22:48)

Yes. Right. I mean, there are so many things that can be stigmatized. Just life in general can be stigmatized. And so I love that you’re having this broad view of it. Of course, I don’t want to minimize addressing substance use stigma and mental health stigma. There are so many things, though, that if someone’s experiencing stigma for age, race, socioeconomic status, that can lead.

 

Raven (22:57)

Yeah.

 

Whitney (23:17)

mental health and substance use. So let’s address all stigma because they’re not completely separate and distinct things. They can lead to one another. So you’re taking it upriver in a way and that’s what we need, right? We need those upriver. And I’m excited about the, you said, sharing what other communities are doing because there are so many programs out there that people have no idea about.

 

Raven (23:31)

Exactly.

 

Whitney (23:46)

and that are making an impact. And there’s just not that awareness because of stigma. We don’t talk about this great addiction movement in whatever city because it’s just people aren’t giving it the time it deserves.

 

Raven (23:59)

Yeah, a great example is that from the conference I learned that only Pittsburgh and Philly have clean needle exchange programs. And the big reason is because we don’t want to talk about that. Yeah, so I mean, it goes to show that being able to provide the light to that will help hopefully go a long way at addressing these issues with a little bit more compassion.

 

Whitney (24:19)

Right, right, absolutely. And the conversations that’ll come and the motivation, okay, well, why doesn’t my area have one? And who is stopping it? Right, it can be done. So what are the barriers? And then that creates an action plan.

 

Raven (24:38)

Yeah, exactly. Yeah, exactly. Being able to identify the barriers and to really be able to get the patients the treatment they need and improve the outcomes. Like I said, a recent study, which I’d be happy to link to you, by the way, was indicating 80 % of patients said that their stigma, being stigmatized, was more, was more debilitating than their actual condition. And I think that alone says a lot.

 

Whitney (24:49)

Yes, please.

 

It does. I’m curious, and maybe the article got into it, but what are your thoughts as to why that’s the case?

 

Raven (25:10)

Well, I think that actually harkens back to something that we learned from the first conference, which thankfully was a second was a value that came back during the second one was that idea of self stigma as well. The even if maybe we’re not being stigmatized by our doctors, we have been stigmatized before. So we expect that. So in a way that it’s always a two way, it’s always a two way street. Like you said, none of these things exist by themselves. So it’s nothing’s in an envelope. Everything’s always going to be influencing one another and connect it to itself. So

 

whenever it comes to even our own facets of identity and how we identify, self stigma is wrapped into that. So being confident in who you are with yourself, being able to see people for who they are as themselves without projecting anything onto them can be exceptionally difficult. I mean, it’s exceptionally difficult to just see people for who they are. So we have to unlearn all that. And that’s okay to unlearn all that. Taking it from a position of compassion is a big part of it as well. Recognizing that

 

Whitney (25:59)

You

 

Raven (26:10)

If your doctor is stigmatizing you, it’s not just because they got to stick up their butt and they’re an old school doctor and they don’t want to learn anything. Maybe they just haven’t been exposed to it and that they have room to learn. And like, I just feel compassion across the board is going to be a big catalyst to helping this movement grow.

 

Whitney (26:30)

I appreciate you saying that because it can, I know I fall into this myself. I can get frustrated. Come on, why can’t you use the right language? Like don’t, you know, don’t you care? But that’s not going to elicit the person’s motivation to engage in maybe in language that’s less stigmatizing. It’s just gonna create another barrier and separating us and putting us against one another.

 

So thinking about the person who is maybe acting in a way that is stigmatizing or using words or what have you, having compassion for them is something that I know I need to do better with.

 

Raven (27:12)

It’s difficult, it can be, and I like to think all the time, I might be getting out there, I like to think all the time that there seems to be something at play that wants us always to be divided and fighting, so anything we can do that’s actively acting against that, that’s just loving one another and appreciating each other for what they are, is doing the world what it needs.

 

Whitney (27:31)

Yeah, yes. And coming back to the unlearning, I mean, that’s such a big part and it takes some intentionality. And I’m even thinking this through as we talk now that I probably haven’t recognized that intentionality and caring are different. Someone can care and not have the mindfulness and intentionality yet to be able to implement, you know, the

 

Raven (27:37)

now.

 

Whitney (27:59)

the non -stigmatizing approaches. In many ways, our brains are built to categorize and to classify and to make these rash assumptions because way back when we had to for survival, we don’t really need that as much anymore. Yes, if we see something dangerous, we wanna quickly get away from it. However, it’s not so relevant in a…

 

a society of where there are laws and things like that. And I think that’s part of it is recognizing that there is this human instinct to make these rash assumptions.

 

Raven (28:42)

No, yeah, to make these rash assumptions based on that survival mechanism to categorize and recognize that that might be something unfamiliar or unsafe and we do naturally a lot of the time fear something that might be unfamiliar to us. So whenever we project the stigmas, it’s nine times out of 10, I would even say 10 times out of 10. It’s completely unintentional and it’s probably not even, they’re not even aware that they’re doing it. I know I’m guilty of it. I think everyone’s guilty of it. But I think it’s things like the conference that really do help.

 

Whitney (28:54)

Yes.

 

Raven (29:12)

bring it all to light.

 

Whitney (29:13)

It does, it does. And with the conference coming up, how do people get involved? What can all of us do to support what you’re working on?

 

Raven (29:28)

That’s another amazing question. So you can go to our website advocacyagainstigma .com where our amazing developer Carolyn, shout out Carolyn who works tirelessly to make sure all the backend is all aligned with everyone’s emails and everything. So you can submit your information there or you can reach out at info at advocacyagainstigma .com or you can just reach out to me directly. That’s always fine too. I’m easy to find on LinkedIn or wherever, but

 

You can go to our website advocacy against stigma .com to get involved. We’re always looking for sponsors. We’re always looking for educators and researchers or anyone who’s breaking the mold and doing something innovative to help destroy stigma and help improve patient outcomes overall. And that can, like Whitney and I have talked about, that can be anything from age -based stigma to, I mean, I’m a cannabis person. So I mean, for me, it’s about what medicine you use, but it can be really anything. It could be anything at all that people unfortunately are stigmatized every day.

 

and it’s getting in the way of the treatment they really need. So if you have an organization that’s contributing in a great way, I would love to talk to you.

 

Whitney (30:28)

How exciting the movement that you’re you’re leading is gonna do some really great things and I’m gonna ask you a question that I don’t ask everyone, but I think it’s really appropriate fast forward five years into the future and Advocacy against stigma is everything you’ve dreamt it would become What does that look like?

 

Raven (30:54)

Hmm now that is a great question

 

So completely off the cuff, I’m not great at thinking five -year plans out, but I’ll say that I would like for it to be a conference that is known on a national level, that we have national harm organizations alongside, but I also want it to be able to be something that has inspired more local organizations to take that upon themselves. Advocacy Against Stigma, as I’ve mentioned for the first time, was really hyper -located to Allegheny County in Pittsburgh, Pennsylvania.

 

Second time around, it was kind of more broader in Western Pennsylvania. I would love to see, I would love to see Cleveland have one. I would love to see Chicago have one. I would love to see all these little, I would love to see communities, even smaller communities and places like West Virginia have their own stigmatizing conferences so they can all discuss solutions together to really get down to the problems.

 

Whitney (31:51)

how fascinating to have these little pop -up working conferences of, you know, bringing it to the surface and saying, okay, what are we all going to do? How are we going to work together to address this?

 

Raven (32:03)

Exactly. And because one thing I’ve seen from our conference alone just in the past two years is how many relationships have been built on that, how many working collaborative relationships have been built on that to benefit the patients at the end of the day. So seeing that nationwide, I mean, that’s all that’s way more than I could ask for.

 

Whitney (32:19)

Yeah, that would be incredible. And that we do so much from a top down approach. And you’re really going to the area in the community and leveraging the resources and knowledge. Yes, look at the other places. What are they doing? Can we do that? What would we need? What do we have that will help us do that? But it’s really making it about each community is unique, just like each person is unique.

 

And maybe one community is seeing a certain stigma more than a different type. And so how do they rally together to address it? And that’s just incredible community -based work.

 

Raven (33:00)

Yeah, I think that one of the big fallacies that’s happened, especially in the mental health field and just in general behavioral health, is treating things with this kind of blanket approach. So I think being able to get in and really address the nuances that individualize the communities and individualize the patients is what it’s all about. It’s from the ground up. So yeah, thank you.

 

Whitney (33:18)

Yeah. Yeah. I’m excited. And I’m just so happy that I’ve been able to attend and will continue to attend. I’ll. Yes, I want to support in any way, because I just think you’re doing amazing things and there’s just, you know. We get we can easily get tied into or kind of stuck in a mindset of.

 

Raven (33:28)

and I hope you’re on our planning committee calls as well.

 

Whitney (33:46)

I have to put myself first and so I need to focus on my business or my work or my, my, my, but that’s not when the amazing things happen. It’s through that collaboration and relationship building and giving way more than you get. That’s when we really make change. And so I’m on board, whatever you need, I’m here for.

 

Raven (34:07)

Heck yeah, thank you so much Whitney, this has been a real honor.

 

Whitney (34:09)

Yeah, it’s been great. And before we fully wrap up, I do have one more question for you. If people walk away from today and they can only take one thing with them, what would you like it to be?

 

Raven (34:22)

I have a piece of wisdom here that I have framed on my wall that I think is very important.

 

Whitney (34:27)

Okay. Yes.

 

Raven (34:32)

So whenever you look at, this comes from Ram Dass, whenever you look at the tree, you appreciate the tree for what it is. You’re not caught up thinking like, it’s too tall, it’s too bushy. I don’t like this about it. I don’t like that about it. I wish it were this for me. You just like the tree. So I think that we should always try to practice that with people as well.

 

Whitney (34:52)

I’m gonna need you to send me a picture or something that I can get so that I remember that myself, because that’s amazing. I love that. That’d be great. Well, thank you Raven so much for taking the time, for the work you’re doing, for the work you’re going to do. It’s having an impact.

 

Raven (35:00)

I will.

 

Thank you so much. And like I said, it’s been a real honor and I look forward to seeing you on the planning committee calls and seeing you at the conference next year.

 

Whitney (35:15)

Yeah, absolutely. And all of you listening, get involved. We all can do something, right? Whether it’s getting involved with advocacy against stigma or whatever local organization is in your area, you don’t have to be an expert. You just have to care. So share this, like, subscribe, get this resource out to more people, and let’s just keep reducing the stigma. Thank you all for listening.

 

Raven (35:40)

Yeah.




The Advocacy Against Stigma Conference tackles critical issues surrounding stigmatized life experiences and the barriers to healing created by pervasive stigma. This unique conference brings together individuals with lived experience, medical professionals, and advocates for a powerful exchange of stories and perspectives. Explores the conference’s impact through a conversation with Raven Areola, co-creator of the […]

Continue reading "Voices from the Advocacy Against Stigma Conference"
Pictures of the people who will discuss mindset

Mindset Strategies for Overcoming Challenges and Thriving

Reduce the Stigma: Unfiltered - Kicking Off the Conversation on Mindset

believe in yourself you can do this
growth mindset

The inaugural live stream of “Reduce the Stigma – Unfiltered” dives deep into mindset. From self-limiting beliefs to daily practices and cause for celebration, this episode delivers valuable insights into how to harness your mindset to overcome challenges and thrive. 

Links

Angel Fuller: angelfuller.peerspecialist.us and on YouTube @riseandthrivepeerservices 

Roger Crouell: https://syndicate12.com/members/rogerc/ and https://straightupcare.org/consultant-profile/465

Suggested Media 

Whitney – It Couldn’t Be Done by Edgar Albert Guest
Dr. Mo – The Secret by Rhonda Byrne and Think Again by Adam Grant
Roger – Sylvester Stallone movies Rambo and Rocky
Angel – Forrest Gump movie

Click here for the episode’s full transcript.

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Transcript

Whitney | She/Her (00:00)

Welcome everybody. This is the very first live stream show of Reduce the Stigma.

 

And Reduce the Stigma is brought to all of you by Straight Up Care, the comprehensive telehealth platform for peer support services. No matter what you’re going through, there’s a peer specialist ready to support you. Visit Straight Up Care, where recovery is powered by lived experience. And today’s episode is in particular sponsored by Syndicate 12.

 

Syndicate 12 is an online recovery community and social media platform designed exclusively for those with mental health or substance use lived experience. With live chat rooms, contests, posts, and more, you earn points for taking care of your recovery and then can redeem them for great rewards. We’re all headed over to Syndicate 12 because together recovery is possible. I’m your host, Whitney Menarcheck, and with me today, I have such a great group.

 

and I’m gonna let them introduce themselves here in a moment. Before we do that though, we just launched this segment. We already have two, we have Recovery Conversations and Meet the Peer, and today we are starting our new segment. We ran a contest and we had some great suggestions and I’m excited to share that the new segment, this segment, will be called Reduce the Stigma Unfiltered because we’re gonna have those tough conversations that go.

 

deep into the things that most people are too nervous or maybe it’s kind of taboo to talk about, but we want to reduce the stigma around everything. And that’s what we’re doing here at Reduce the Stigma. So I’m going to first ask Dr. Mo, can you introduce yourself and tell us why are we talking about mindset if we’re a podcast that is going to explore taboo topics?

 

Dr. Mo (01:55)

Yeah, absolutely. So I am Dr. Mo I’m the CEO of Straight Up Care and I’m super happy to be here on Unfiltered. So the reason we start with mindset is, I mean, where does everything start, right? It’s how we think about things, how we understand things, our perceptions, the way we take things in. And so I think if we don’t start talking about mindset, the way we think about things, our biases, and how things really look through our lens, then we’re not.

 

doing ourselves justice for the hard conversations that we’re having coming forward. So we thought if we started with mindset and being able to understand and intake and know that we can learn and unlearn things, then we would be doing ourselves a disservice. So here we are on Unfiltered talking about mindset first.

 

Whitney | She/Her (02:38)

Thank you so much, Dr. Mo. And with us today, we have two incredible peer specialists that really are setting incredible examples of how to implement a healthy mindset and use that mindset to overcome challenges and be successful in your life. So I’m gonna go ahead and ask Angel, please introduce yourself.

 

Angel Fuller (03:00)

Hi, I’m Angel. I’m a North Carolina peer support and I’ve been working with a Straight Up Care -up care, I think, since the beginning. So I’m really excited to be here and hopefully we can all grow together.

 

Whitney | She/Her (03:18)

Thank you, and Roger.

 

Roger Crouell (03:21)

My name is Roger Cruell I’m another one certified pit support specialist here with Straight Up Care Care, and I’m just glad to be here. Glad to be here.

 

Whitney | She/Her (03:29)

We’re glad to have you both and we’re hopefully gonna learn more about you as we go through. And everyone in the audience, please feel free to submit your questions because we’re here to talk about what you wanna talk about. And so to get things started, because we are talking about mindset, I’m gonna go ahead and ask you, Angel, what, you know, mindset’s a bit of a buzzword lately. In your words, what is mindset?

 

Angel Fuller (03:56)

mindset’s pretty broad. I guess it depends on who you ask. But for me, I’ll correlate back to what Dr. Mo said, perception, the way I see things because, and it’s also to me mindset is also growth though, because with the proper mindset we can grow what you don’t know, you can’t grow. So once I get in the mindset of growth and understanding, then I have two choices to move forward in that growth and understanding or to stay where I am.

 

Dr. Mo (04:20)

Thank you.

 

Angel Fuller (04:26)

So mindset for me is really one of the building blocks and foundations for being able to grow and move forward.

 

Whitney | She/Her (04:35)

Wonderful. That’s a great definition and really sets the stage for what we’re talking about. And like Dr. Mo said, we have to have that mindset to talk about these tough things. So Roger, where does mindset come in? You know, we’re a platform about lived experience, addiction, mental health, all those tough things. Why is it that mindset plays an important part?

 

Roger Crouell (05:00)

Because it controls the way you think, you feel, you behave. It pivots everything you do, how you see yourself. So once you do that, you’ll stop repeating what you do and involved in your situation.

 

Whitney | She/Her (05:17)

Yeah, absolutely. And you know, I’m curious, and this is both to anyone, Dr. Mo, you as well, what are some of the things that you do to tend to your mindset and maybe start the day in that right mindset?

 

Dr. Mo (05:36)

I’ll start. So we’ve recently started putting stickies on our mirror.

 

of something that we want to be reminded of. And I’m talking about me and my six year old daughter. And so last night she said, what are we, what are we putting on the wall tonight? And I was like, I don’t know what’s something we, you know, something we want to remember something that we’re whatever, you know, and she was like, I think we should put lucky up there. And I was like, what do you mean lucky? What does that mean? And so we ended up talking about gratitude and what gratitude looks like. And that if we think about things that are great in our lives, that brings more greatness to our lives. And we have this like awareness of greatness and what it looks like.

 

and how to magnify that. And so we turned lucky into gratitude, but that’s how I start my morning too. You know, I don’t know if anybody else does this, but I often reach for my phone, maybe to check what time, maybe to see how many, I don’t know, people have messaged me so I can get started. But before I reach for that phone, I spend a little bit of time, what am I grateful for? Because if that can be the first few thoughts that I have in the morning, then I can radiate that throughout the day. And so when I think about mindset and how I kind of strategically

 

place things in my path, that’s one of the things that I do.

 

Roger Crouell (06:47)

If I could pick it back off my doctor Moses I do I do some something similar They do things before I wake up in the morning. I listen at something spiritual now listen at some motivational you y ‘all probably see a lot of stuff I put in our platform or about the motivation because the first 15 minutes When you open your eyes the first 15 minutes of your date, that’s how you are. You can portray your outcome If you listen at something negative you tell your mind it’s gonna be negative. I don’t want to get up to go to work I don’t just it’s done cute you move

 

But if you put some positive in it, let’s go get it. The day is done. Go, go, go. Your day will get better. It will heighten that much.

 

Dr. Mo (07:27)

Absolutely.

 

Whitney | She/Her (07:27)

Nice. What about you, Angel?

 

Angel Fuller (07:29)

I think that for me, the first thing I do, honestly, when my feet touch the floor is I start my workout video. Now, it doesn’t sound like a good mindset motivation, but the program that I follow, one of the things that she says all the time is it’s you against you. So as soon as my feet hit the floor, I’m making the decision whether I’m gonna be productive in this activity because getting my body moving and taking that quality time to myself every morning is very important.

 

but not only that, it gives me the time to think about what post I’m going to put on social media today for my peer support, rise and thrive. And then when I get outside, after I do my sweating, thanks to Roger, I then listen to a motivational video for my entire walk. Okay. And by the time I get back in the house, I’m prepared to feed the kids and start the day and make sure that I’m being filled up enough in myself to be able to fill up other people because.

 

Whitney | She/Her (08:13)

Okay.

 

Angel Fuller (08:25)

I lived in a survival mode for so long. Even after I got cleaned and I got sober, it was just survival. And I told somebody one time, they said, well, why don’t you tell your story? And I said, for many years, I was just trying to rebuild my life. And I didn’t want to have to recommit to all the stuff that I had done to new people. I didn’t want to do that. So it took me a long time to get ready and prepared to be able to give of myself in all of what I had done.

 

to other people in a positive way. So listening to those things that Roger listens to every morning and telling me that, telling myself that I’m here against myself every day reminds me now and gets me in the mindset of wanting to help somebody else. Whereas I used to just want to help myself to survive.

 

Dr. Mo (09:14)

I love that. That means you’re thriving.

 

Angel Fuller (09:16)

I’m trying!

 

Roger Crouell (09:17)

Yes.

 

Dr. Mo (09:19)

I love it. So Angel, one thing that you said that I want to kind of jump back to.

 

When you first started talking about like mindset and how to how to shift your mindset and having that growth mindset I was reminded of Adam Grant’s book called think again and I use this in a lot of my classes and we talk about what does it look like to relearn things right so Amory was somebody who was on Whitney interviewed and a super awesome dude and he was talking about how he had to relearn What it looked like to go out and do things in public sober, right? He didn’t have to

 

to learn how to eat again, but he had to learn how to go out and do things again sober, right? And that’s a whole process that we don’t think about. And ever since I watched and listened to Whitney and Anne -Marie talk about this, I’ve been using this explanation often to help people understand a little bit more about what addiction and recovery, the part of recovery that it looks like, right? Like we are able to do these things, but it looked different, right? Anytime we make a large change,

 

We know how to do some of the things, but we really have to shift our mindset around it. And then what does it look like when we get new information? So if I give you a new research article that totally, you know, or maybe I give you three, let’s say three research articles that proven a new point, right? And your old mindset says, okay, but this thing is what I’ve been told and this is what I know. Okay. But now we have new information, so we have to make new memories. We have to start using that new information moving forward.

 

Angel Fuller (10:49)

Mm -hmm.

 

Dr. Mo (10:49)

I think sometimes people get really stuck in that, but this is what I already know and this feels comfortable for me, right? And I get it as humans, we don’t honestly like our brains are these wonderful machines, but they don’t actually want to think, right? They just kind of want to go and get the things done. And so we have to really push ourselves when it’s time to think, when it’s time to use new words. So I was talking about like, even today in class, we were talking about the shift in vocabulary with trans people. And even though maybe they then didn’t make

 

make sense to you at first, either you did a couple of things. You either started saying it because you knew it was the right thing to do and you wanted to make sure people felt included, or you started to think about it and understand it and they, them is plural. And maybe that’s because they feel like themselves as plural, right? And so understanding that these new language and new things happen and then we change and we shift, right? We do it all the time. We just kind of buck against it. But I think when we talk about mindset, we can’t be so stuck in it. Like you were saying, Angel, we have to be able to have this growth.

 

we can have our lens and that’s fabulous and amazing, but then how can we open up that lens to be able to shift when needed, to pivot where we see it’s time to pivot and to be respectful of other people if we’re talking about the other scenarios that I brought up. So that was kind of some of my takeaways from you as I heard you talk.

 

Angel Fuller (12:08)

Yeah, growth mindset and what you’re talking about learning to adhere to new material is we’re wired for confirmation bias. So if I’ve heard it enough and I’ve experienced it enough, even if I can’t explain why that we’re I’m seeking confirmation bias from what I already know, because that makes me feel comfortable. So part of growth mindset and mindset in general is being able to step outside of your level of comfort.

 

Whitney | She/Her (12:09)

in it.

 

Angel Fuller (12:37)

And it’s scary, which is why we don’t do it. I mean, if somebody told you go stick your hand in that water, there’s an alligator in there, are you gonna do it? Well, probably not. But if somebody says, okay, that alligator has a muzzle on it, and I promise you, they cannot break it, go stick your hand in that water because something good is in there, are you gonna do it then? So we have to get past what we’ve known and what’s been filled into us, even if it’s good stuff, because there might be even more good stuff on the other side of that.

 

I struggle with confirmation bias a lot, especially with things in the mid -snow health field and new endeavors that I’ll be coming to in the fall. And I’m like, I don’t want that. I don’t like that. That doesn’t feel comfortable. I don’t want to go there. I don’t want to do that internship. I just don’t feel good about this. And I’ve had to have some hard conversations lately with people to try and change my own mindset on how I feel about going into this next season of life because some of the things I don’t agree with or some of them I don’t understand.

 

And how am I gonna get past that so that I can learn what I was sent there to learn because obviously there’s a reason why I’m going there. I haven’t figured it out yet because I don’t agree with it but there’s something for me there. So I’ve been working a lot with mindset lately to try and just branch out but like I said it’s scary.

 

Whitney | She/Her (13:56)

It is scary and it’s, we’ve reached a point in life because of experiences, what we’ve been taught and things like that. And it can be so ingrained in us without us even realizing certain things that we’ve taken in. And that is probably one of the hardest things, at least in my experience is saying, wait, that natural way that I’ve always thought I’m going to question it and trying to go about it differently. So I’m…

 

I’m gonna throw this over to Roger. Roger, what, so we have a question here from Sarah. How do you get started on changing that mindset, on working on your mindset? Because she’s saying she doesn’t even know where to begin. What would you say, what is that first step someone can take whenever we’re talking about really rewiring how our brains work?

 

Roger Crouell (14:46)

Good question sir. first of all, it starts with you You have to believe in yourself. Look in the mirror and Keep telling yourself every day you can do this even though how scary it is You just got to rewire your whole rain what you can’t can’t do it and just go for You spend all your time doubting yourself now put our positive energy saying I can do this Pat yourself on the back. Look at the mirror and and because you gotta be

 

Comfortable being uncomfortable. That’s how I used to.

 

Whitney | She/Her (15:20)

to be comfortable being uncomfortable. Okay, how? And you know, because that’s one of my one of the questions I had because, you know, thinking about like mental health and addiction or even involvement in the criminal justice system, there’s this belief of if people just want it bad enough, and it makes it sound like, mindset is a quick flip of the switch.

 

Angel Fuller (15:25)

Bye.

 

Whitney | She/Her (15:47)

you are doing something wrong or you know you aren’t caring enough where where’s the difference like because we know mindset is different whenever men wanting it enough can we kind of like explore that what is it that is more than just you know it’s not easy

 

Roger Crouell (16:05)

But it was your purpose. See you got to find a purpose also. It’s a purpose to evolution You got to evolve And then you start evolving till you be involved You know, you have to take those things They stages and all that because if you don’t you’re gonna repeat You’re gonna repeat the process

 

Dr. Mo (16:26)

And I think it’s habit stacking too, right? Like we have to figure out what’s the one good thing we can do today that we can have it stack on. So if today, the only thing you can do is not drink over the noon hour, then cool. That’s great. You know, we talk about harm reduction, we look at harm reduction, but what does that look like? And really actually starting to move the needle when we’re talking about addiction, right? So we may think like you’re struggling and you’re having some heartache and like you should be able to make a change. This should be enough.

 

that should be your breaking point or your rock bottom if you will but that doesn’t matter what you think about that person that person has to kind of have the support and the tools right so it’s one thing to say like

 

You do it. And it’s another thing to like have somebody there to say, Hey man, this is how we can do it together. Or maybe try this or like have some of that like outpouring. So that’s a hard one to answer when, when addiction, when there’s substances that come into play. But if it’s just you and mindset about making a change and maybe you don’t have substances involved, like then it really is you kind of like figuring out where your bootstrap is and maybe it’s not a bootstrap, maybe it’s a swimsuit, maybe it’s whatever. Right. And just putting it on one piece at a time.

 

and being able to just make that next step. So maybe today you just put, you want to start surfing, which I do, why am I not surfing? And so today I just put my swimsuit on and I get out the door, right? And then tomorrow I put my swimsuit on, I get out the door, I get to the beach and then so on and so forth, right? It’s just making those little itty bitty steps. And then maybe one day I’m actually out there surfing and I make a video from out there, right? Like whatever that looks like. But it really is just kind of like, what are those habits look like? How can I make something small? I think people think, and honestly people ask me this all the time, how do you,

 

How do you look busy? Which I feel like I’m happy busy. So that’s cool. But like, how do you do these things that you do? Well, I just try and do at least a little bit a day, right? Because the minute I go, whew, I do not want to tackle that next grant, Whitney. Right? The minute I do that and then I put the grant in a pile and then I go, yeah, I don’t want to look at that yet. And then five, 10, 12 days have passed and I’m like, my God, I have 12 days worth of work to do on that grant. But if every day I say, hey Whitney, my stuff’s updated. Hey Whitney, this.

 

Whitney | She/Her (18:22)

you

 

Dr. Mo (18:39)

me that right every day I say I only did a little bit today but I did something right then I know that I’m making progress and then by the end of the year I’m like hey we got everything done and we got the grant this is amazing right so just little little itty -bitty steps lead to huge huge huge things

 

Whitney | She/Her (18:56)

You know, I love that you bring up like piecing it together. One of the things that I always have like uses an analogy was like the snowball effect and that no big win comes out of nowhere. It comes from a whole lot of little wins and they build on one another and it’s like that first little like snowball that rolls into the snow gets bigger, bigger, bigger because we build on it. The excitement builds and I’ve

 

I don’t remember exactly how you said it, Mo, but you were saying, maybe I didn’t do everything today, but I did something. And why is it, why are we like, why do we have a perspective of like, that isn’t good enough, right? Because that’s what it is. We have these expectations that we’ve been drilled into us that we’re almost in a way setting ourselves up for failure. Has anyone else had that?

 

Angel F (19:49)

I definitely, I just did a post about this not too long ago actually because a lot of times we can implement expectations not just on ourselves but on other people and I had to have this hard conversation with somebody not too long ago and they were worried about the expectations that were being placed upon them and I said, you know, I want you to think about something and this wasn’t a negative to the person who is placing the expectations on them. I said, but I want you to think about

 

has the person who has placed those expectations on you been able to achieve those expectations for themselves? Because here’s the thing, if they have not, then I need you to reduce the pressure on yourself because obviously it’s harder than both of you think it is and that’s okay. But don’t put so much pressure on the expectation and don’t allow other people’s expectations to weigh you down because unless you’re working in tandem to achieve that expectation together,

 

It’s just one person pushing another to see who can get it how far and you’re hoping that the other person maybe gets there before you do because you just haven’t figured it out yet either. Start working together. Stop setting unrealistic or unspoken expectations on other people as well. If I don’t know your expectation, I can’t help it and I can’t fix it. And if I set an unrealistic expectation on myself, well, but why?

 

Dr. Mo (21:12)

I love that.

 

I think about this, like, you’re coming home and it’s been a really long day and you’re driving your car and you really, really hope that your significant other did the dishes and you walk in and the dishes aren’t done and you are immediately pissed off. And you’re like, how, they’re like, what are you mad about? Well, the dishes, you’re like, I didn’t know you needed, I didn’t, you didn’t say a word, right? So how am I supposed to read your mind to know that the dishes should be done? Like, yeah, maybe we have like a, you should do the dishes if you’re just chilling. But still, like, if you don’t tell somebody what you expect,

 

from them, you should never expect them to do anything, right? You have no communication in there, you have no like reason for them to do the thing if you’ve not communicated it. That was great.

 

Whitney | She/Her (21:55)

And to take it even a step further, if I can, in this little off of mindset, but I have to just add this in. Let’s also communicate how to support us. We expect people to know, right? If I want my wife to do this, I want her to show up in a certain way. Well, how the hell is she supposed to know what I’m expecting or needing if I don’t communicate it? That was one of my favorite things working with clients was to say,

 

especially like when they were returning to the community after incarceration. Write it up. What do you need people to do when you get into the community? How can they support you? What are the warning signs? Let’s not hope that people will catch, pick up on it. Let’s give people the tools and the information to be there for us because that’s going to benefit us. And then let’s also ask people, what is the best thing to do to support you? So it’s like all of these different ways of communication.

 

I’m hearing routines and habits, stacking the winds. What other things go into having the right mindset or cultivating and feeding that mindset?

 

Dr. Mo (23:06)

So one thing I made a video on today was making a crisis plan. So again, a little off, but hang on, I’ll bring it back in. So we know that if we’re making a change, right, whether it’s a mindset change, it’s a substance change, it’s just a life change, and life throws us a monkey wrench, maybe somebody passes away and it’s extremely traumatic or some other traumatic event happens. And we know that our old habits are gonna be our first go -to, right? So what can we do to plan in advance?

 

I’m not a doomsdayer. I’m not saying plan for everything that ever is gonna happen, but I’m saying what happens?

 

when a crisis happens, who do you text? Who do you call? What do you do? And then have that plan in place. Cause I don’t know about you guys, but anytime something gets a little crisisy, my brain goes, and I can’t do anything. Right. I don’t know where to turn. I don’t know who to reach out to. I have a huge array of amazing people in my life, but I feel so alone. And if we can kind of create these plans when we’re not in crisis, who do we reach out to? What does it look like? That helps us to kind of, again, stack up things in our favor for when things

 

get out of control. So we know when our brain is in another place how to kind of navigate forward. So that I guess tools and tricks I guess sorry.

 

Roger Crouell (24:21)

Like dr. Moe, you know me and also y ‘all you know, I work with our inmates so I asked I asked them Every time you’ll plan the action your plan to action your plan to action and some of the things in there Why don’t things don’t go your way when you get out? You burned a lot of bridges. You did a lot of things you have to where you’re gonna go What job gonna see cuz life gonna throw you all kind of more courage. You got a bulls -eye on your back already Do not revert back to what you know

 

Dr. Mo (24:36)

Thanks.

 

Roger Crouell (24:51)

Why you in that take time to put a plan action together and you should be I’m not going to say fine whether to go smoother

 

Dr. Mo (25:00)

Absolutely, I love that. So another thing.

 

Angel F (25:02)

That plan of action is a change mindset, right?

 

Dr. Mo (25:07)

Absolutely. And it’s there, right? Like I always think preparing for things in advance before they happen is so powerful, right? We talk about journaling. We talk about goal setting, all these different ways to say, I can, I want to see it, right? You want to start working towards your dream house. What does your dream house look like? How are you going to work towards it? If you don’t know what it looks like, if you’ve never drawn it or even in visualize that, how do you, how are you going to get it? You’re not, you’re not going to get it.

 

Angel F (25:08)

Really?

 

Roger Crouell (25:33)

get it. That’s right.

 

Dr. Mo (25:35)

So I think one thing that I’d like to talk about quickly on mindset is biases. So if you’ve taken the straight up care training, or honestly, if you’ve been a student of mine anywhere, you know that you’re going to do a biases project with me. And this is difficult. These are difficult to read. It’s difficult to think about. It’s difficult to walk through. And some students can only go real low level, right? They’ll talk about confirmation bias and that’s, that’s okay. Right. As long as we know what role it plays in our life. And as I talk about this, I don’t want you to think that you’re bad. If you start to think about your biases.

 

Because one thing biases do is they’re there to keep us safe, right? Our biases have been garnered by us navigating life. So when we navigate life, whether it’s something we were told as a child and it’s kind of a core memory for us, or it’s things that have happened to us that make us, you know, stay in this path to walk safely. So one thing I think about, and I tell this story all the time, is that if I see a large group of Native American women, I get a little uneasy. Not because I’m a racist, but because I got jumped when I was a kid. And so my body and my brain

 

tell me, be careful, this has already happened to you once. And then as soon as I go, you’re safe, like then that’s gone, right? Am I a bad person? Am I racist? Absolutely not. But this is something that happened to me. So oftentimes when I talk about biases, people get bent out of shape because they’re like, I don’t want to do this or I don’t want to be that. And you don’t have to be anything. But what you have to be is aware. So when we talk about mindset, we really want to keep in mind awareness is really what keeps it key. But if you’ve never thought about where your biases are, if you’ve never sat down and looked at them, I really challenge you

 

to do that. What are your biases? Where did they come from? That’s the biggest one, right? Like thoughts can come into your head and you’re not a bad person. It’s if you act on those or you speak on those, then I might say the opposite, right? And where did they come from? Did they come from you? Did they come from your parents? Did it come from something that happened to you, a traumatic event? And if it did, how does that impact other people around you? So if you’re navigating life and you’ve never thought about what your biases are or what role trauma had played or something, you know, that acted on you,

 

A lot of times I work with younger students and so they’re like, my parents told me that and I don’t actually believe that anymore. I’m like, cool, now you get to change it, right? Like now you got the chance to like redo that. But it really is this awareness. So when those thoughts come in or if those thoughts come in, where do they come from? And how do you not act on them? You don’t have to even change the thought because we can’t control all the thoughts that come into our brain and we’re not bad people if we have weird thoughts, right? You’re not a weirdo, you’re not bad, you’re not anything, but it’s just what we do with those thoughts that

 

that makes the change, right?

 

Whitney | She/Her (28:09)

Yes.

 

Dr. Mo (28:11)

I didn’t mean to clincher that statement, but I just think that biases are so important. And if you guys have anything to add about biases or how to navigate them or like what that looks like, I feel like it’s a big part of mindset, right? Like what has happened to us, where we’ve been through really plays a huge role in how we interact and navigate with other people in the real world.

 

Whitney | She/Her (28:14)

Yes!

 

Angel F (28:32)

very much so. When I discussed earlier about having apprehensions about these potential internships, it is because of biases. It really is. It’s things that I grew up hearing, even though this is a field that I already work in, I still have certain biases. And oddly enough, one of the ones that I had in regard to an internship, my dad was the one who influenced my bias in my problem, right? The thing that I thought was problematic.

 

And in speaking to him a few weeks ago, he was also the one who today as a more seasoned adult tried to help me change that bias that he had helped instill in me in the first place. And I said, you know, I wouldn’t have thought about that myself if you hadn’t helped me through that, you know, insight there. So my mindset shifted immediately. I was like, maybe this is what I could do in that internship. That’s going to make it comfortable for me, but beneficial for the client too.

 

in a place where I was originally very uncomfortable with the idea of what it was. And he’s like, yeah, he’s like, you know, it’s gonna be all right. And I was like, but all my life I thought blah, blah, blah. And he was like, yeah, I know I told you that. He’s like, I’m sorry, I’m sorry, but I’m here to help you change your mindset on it now because this is something that I know that you’re passionate about and you wanna be successful in, but this is a stumbling block for you right now.

 

Whitney | She/Her (29:43)

hahaha

 

Angel F (29:55)

And I know that you need this internship and I don’t want you to go in there with a mindset that’s gonna be detrimental to what you’re going there to do, which is to grow. So, yep.

 

Dr. Mo (30:05)

I love that. What a powerful parenting moment too. That’s really rad.

 

Angel F (30:09)

I can’t tell you, he does his best.

 

Whitney | She/Her (30:13)

So, you know, those are those internalized biases, right? Those things that we have started, we’ve taken in and said, you know what, I can’t do that because I’m not good enough in this, that, a lot of limiting beliefs. And that’s a key component of mindset and using mindset to shift, there we go, you know, how you approach things. What are some of…

 

the common limiting beliefs you have experienced or you’ve heard others experience that have kind of been a hurdle for implementing this more of a positive mindset and approach.

 

Dr. Mo (30:59)

Can I not answer your question and move on to something real quick? Okay, I’ll bring it back though. So I think when I hear positive mindset, I want people to know that there is such a thing as…

 

Whitney | She/Her (31:02)

Yes!

 

Dr. Mo (31:12)

a bad positive mindset too. When we push positivity on people, there’s a word I’m looking for that’s not bad, but toxic. There we go. Toxic positivity. So I did this to my kid on accident, to be really honest with you. I was just like, yeah, but see the bright side and yeah, but blah, blah. Cause I am sunshine and rainbows. And that I’ve taught myself to be that. I was pessimistic a bit like my young son. Anyways, he was like, you know, I really don’t.

 

Angel F (31:22)

-huh.

 

Dr. Mo (31:40)

enjoy your sunshine and rainbows every day of my life and it just doesn’t work for me and I want you to know that it’s that it’s impacting me and I was like, okay. And then I did a little Googling because that’s what I do and I was like, I was being like positive toxicity to him by just shoving it into his face. And now I still am not I mean, I’m not going to change myself for that kid, but I’m also not going to be that born in his side either. And so I now listen to what he has to say a little bit longer a little bit

 

Angel F (31:49)

Mm -hmm.

 

Dr. Mo (32:10)

more allow.

 

and say what he needs to say before I’m like, yeah, but okay, is there a silver lining? It’s not like, what about the silver lining? You know, I’m not in his face, but I’m like, can you find a silver lining in this? And if he says no, I leave it at that, right? So when I hear positive mindset, I just wanted to make sure that we knew that that exists. And I think for as far as limiting beliefs, what I hear the most is I can’t do it or I’m not good enough to do it is what I, I think that’s like the overarching couple that I hear.

 

Roger Crouell (32:41)

Without moving somebody says they’re not good enough or I can’t That’s when you know me. What’s the word can’t we got to take that out of the equation? You know can is shouldn’t even be a word. I can’t do what you can do it. You just ain’t set your mind to it What is limited you what I what has got you so stalemate that you say you can’t do it if it’s educational get educated, you know, I mean if Things like that, you know, I mean I I kind of took that out of mine Okay

 

I feel like I can do anything. I guess that’s the mindset and I think everybody else think like that. That’s a little stipulation of mine

 

Dr. Mo (33:11)

yeah.

 

I love that. And it is, you know, some people have much higher hurdles put in front of them, but

 

I really feel like with the right support, man, you can do whatever, whatever you put your mind to these days. And we see it, right? We see athletes doing things that we would have, you know, 20 years, we didn’t even think they could come close to. We see people doing jobs that never were put in those places before. Like we’re really seeing this huge like opening of like the sky truly is the limit. And I love that we’re seeing representation in all these different areas so that the younger population can see, yeah, I can totally do that. I can fit in.

 

these places and really take out the can, right? A lot of times with people who have a felony or have been justice impacted, you know, we really hear that. Like, I can’t, I just, I don’t have, I messed up, right? And we’re like, yeah, yeah, maybe. And it might be a little bit harder now, but you know, we can hold hands and do this thing together and we can, we can jump through whatever fiery hoop that people will put in front of you.

 

Angel F (34:19)

I think I find myself somewhere in the middle. For one, I get accused of over positivity on a very regular basis. My patients, they either love it or they hate it. I promise there’s no in between. But I think limiting mindsets is to a degree past the experience like we’re talking about. But well, it’s happened before, it’s happened before, it’s happened before. What’s gonna make this time different?

 

Dr. Mo (34:33)

you

 

Angel F (34:47)

But secondarily, as a parent to a varying ability child whose body is never gonna allow them to do all the things that they so desire to do, I find myself being a little reluctant to totally, I don’t use the word can’t, and I agree with Roger on that, that the word can’t can be very limiting. But I also find myself trying to be of a realistic mindset too. I don’t wanna be a naysayer, but I don’t wanna give you

 

100 % you’re absolutely capable of that when I know that I’m looking my child in the face and lying to her. Now, what can we do? Because there are alternatives. If we’re willing to bend and compromise a little bit, then achieving a said goal may be possible. But I don’t want to set somebody up for something that I know is going to be a complete failure if we can work on amending that desire just a little bit to make it achievable. Because I…

 

My daughter, one day she said, well, my, I can’t do that. And she was talking about athleticism or something. And I said, well, you know, outside of having special Olympics, I said, having functional legs is not a requirement to success. I said, the only person that’s required to have functional legs for success is an athlete. So I’m not quite sure what it is you think you can’t do. Now, obviously we know you’re not going to run track.

 

and you’re not going to play basketball and you’re not going to play soccer. But what else is in your desire pool that your legs aren’t required for? Because I promise you, I know plenty of successful people who are wheeling around in wheelchairs who can’t even speak that are mighty, mighty successful. So what are some of those things?

 

Dr. Mo (36:38)

Love it. You’re good, mama.

 

Whitney | She/Her (36:40)

That’s amazing. I just had to chime in on the word can’t. My dad had a saying, the word can’t is not in our vocabulary. And that has been a core tenet of my life. And so whenever you said that, Roger, I was like, yeah, I’m with you. And so, you know, as we are talking about this, you know, there’s the

 

self -talk, the negative self -talk, and I’m looking at our chat here in YouTube and Jessica shares about having self -compassion. You know, and that is, we’ve touched on it a little bit, but what’s, what are your thoughts on that compassion? There’s the compassion for not setting unrealistic expectations, but also the self -compassion to not be perfect. I love your thoughts everyone.

 

Angel F (37:39)

I’m okay with being mediocre some days, I’m gonna be honest. I wanna be successful and I wanna do good things, but I also recognize that there are some days where my 100 % doesn’t look like yours. And I’m okay with being mediocre today because allowing me to be mediocre today is allowing me to reserve my strengths for tomorrow. So you’ll get better of me tomorrow, I promise it’s coming. But today you just can’t have her. Isn’t that okay with me?

 

Dr. Mo (38:08)

That’s awesome.

 

Roger Crouell (38:08)

I agree with that totally I agree with angel, you know me just just be yourself

 

Dr. Mo (38:12)

Yeah, I think.

 

I think there’s times for rest, there’s times for play, there’s times for work.

 

that saying like, if you don’t, I don’t know, make time to be healthy, you’ll find you’ll end up getting sick. However that saying goes, we’ve all heard it, right? And I think it’s so true, right? I know I used to run myself real hard. And when I played roller derby, the way I think the universe and my life would show me that I was going too hard as I would break a bone. And that happened about 10 times until I stopped playing roller derby. I didn’t learn to slow down, but I stopped. But it did, it slowed me down, right? I was like, well, my thumb is broken and now you’re gonna

 

for 11 months. So for 11 months, you’re not doing things at the the rip that you were doing them, right? Or like, I broke my tailbone or just different things that like, it was like, I couldn’t realize how to slow down. So the universe was giving that to me. But now I think I figured it out. I haven’t broke anything in a few years, knock on wood. But just being able to have.

 

Whitney | She/Her (39:14)

as you go surfing tomorrow.

 

Dr. Mo (39:16)

Well, we got some steps between surfing and actually getting surfing. But yeah, I think just having some of that.

 

that space to say today’s not the day. And like we were talking about earlier with the grant, right? Just like I got a little bit done today and that’s going to have to be okay for today. And that’s all that I can give. And maybe tomorrow I can give a lot to kind of catch up or maybe I need, maybe I give zero tomorrow and then the day after I can give again. And I, Angela, I think you’re, Angela, I think you’re right on that.

 

Angel F (39:49)

It’s important because when we were in the midst of our mental health crisis or when we were in the midst of our addiction, the only thing we knew was to be full stream ahead focused on that one thing, to get to the next drug or the next high or to get through this mental health crisis. And so we’re so used to being full stream ahead, whether it’s good or bad, and we can turn a good thing into a bad thing really quickly and not even realize it. So definitely the ability to recognize it

 

and slow down and self -compassion and all of that is very, very important in changing the mindset because I can stop using and my mental health can be back good, but I’m also the same person who has to watch when I’m ready to pick up a book and read it because I will put everything else to the side and I will read that book cover to cover. Sounds like a nice thing, but when you’re me, it’s not a good thing. I mean, everything will go to the detriment of reading that book or everything will go to the detriment of this new hobby.

 

And so learning how to slow down is very, very important, even if it takes 11 broken bones, apparently.

 

Dr. Mo (40:57)

Dang, such a slow learner sometimes. Right, exactly.

 

Whitney | She/Her (41:00)

And that’s okay. Is it not the mo – Let’s – Yeah.

 

Roger Crouell (41:05)

Eventually you’ll get it.

 

Dr. Mo (41:06)

It was so much fun. Roller derby was so much fun.

 

Angel F (41:10)

No

 

Whitney | She/Her (41:12)

And one thing I’d like to share just because it was a big shift for me was, and this was actually taught to me when I was in school to become a counselor, was the impact of the word but, you know, when we’re saying some good thing, but here’s the bad. And what I was taught and what I really then found to be true was everything that’s said before the but usually the good thing.

 

is forgotten and you focus on the next part. And so instead of saying, but, you say, and. You are doing a stellar job and I see these ways you can improve, right? And because we can be more than one thing at a time. We can have these opposing facets of ourselves and it’s okay. And I think that’s a big mindset shift just in a like.

 

our country and our society is to be able to say, yeah, I’m going to take a break from today and or not go to my kids soccer game and I’m still a good mom or what have you. And I just, you know, that’s something that was big for me.

 

Dr. Mo (42:28)

I love that.

 

Whitney | She/Her (42:32)

Okay, we have…

 

Dr. Mo (42:32)

I’m going to be aware of that from here on out because I don’t know that I’ve ever been told it like that. So now I have that awareness. Thank you.

 

Whitney | She/Her (42:39)

Yeah, yeah, maybe it’ll be a little hack for everybody. So we have another person who Nicole is saying that her grandmother also said not to use the word can’t and she’s lived by that. And then we have a question from Corey. What are some techniques that you all use to combat those negative thoughts, maybe combat depression?

 

Roger Crouell (43:03)

Me myself, I exercise, I work out. I’m a gym rat, so that helps me. That helps me tremendously. Find yourself in a positive space. It can be gardening, walking. Use those kind of tools and those kind of avenues to kind of get yourself out there. I know doing something physical helps me.

 

Dr. Mo (43:27)

I agree with that. I like the, would you say that to someone else? Like if something weird comes in my mind, I’m like, would you say that to someone else? Cause I would never say things like that to another person that sometimes come into my own head. And so if I can tell myself or I’m accountable to it, like I write it down and I’m like, that’s not true. Right? So yeah.

 

Angel F (43:35)

Okay.

 

and catching yourself before you shut yourself off. Sometimes depression and anxiety or, or, you know, other mental health concerns can come in so hot and heavy that you didn’t even see it coming and you find yourself closed off. But if you can recognize the changes in yourself, then you need to put yourself back amongst the group of people who are already there to support you, so that you don’t get closed off because once you’re closed off, spiraling becomes so easy because nobody’s looking and you haven’t told anybody.

 

Whitney | She/Her (44:23)

We’ve talked a little bit a couple times now about the people that surround us. Let’s go into that a little bit deeper. What role do people play in contributing to our mindset or negating it? How do we balance that with the people in our life?

 

Dr. Mo (44:47)

Whitney, weren’t we just talking about this, about like the circle of people that are with you and like how your, maybe I dreamt I had this conversation with you. Anyways, you and I are gonna talk about this later.

 

Roger Crouell (44:47)

That’s it.

 

Whitney | She/Her (44:56)

maybe?

 

Yeah.

 

Dr. Mo (45:01)

I miss that conversation with her. Or maybe I just put you in my circle and I was happy that you’re in my circle. I don’t know. Either way, I thought we had this conversation. But like, you know, you’re, you’re a portion of the people that you spend your time with. And so I think, you know, actually really strategically picking that. And the first time I heard this, I was thinking of a couple of friends that I kind of keep at arms reach. And I was like, no, they fulfill a role for me. It may not be the person who’s in like the driver’s seat with me. And I heard this from my friend, Sasha. It may not be the people who are in the driver’s seat with me.

 

but I may just put them in the backseat, but I ain’t kicking them out of the car. You know what I mean? Like, so having those people close who fill up all those spaces for you that you need, right? It might be, you know, your close, your close knit circle or your hilarious friend that stays right here that isn’t serious about life. And that’s okay because you’re, when you guys get together, you just laugh and that’s amazing. Dubs, I’m watching you, right? Like whatever that looks like. So being, being aware of who you put in, in what space in your life too, right? And remember that the role that you play for other people.

 

as well. I think it’s really important to kind of strategically place amazing people in your life and know what role they play for you. And if it’s your ride or die and that’s the person that you need to reach out to and you need something that you can tell them anything and they’re not going to judge you. I mean, there’s a lot of people in my life that I unconditionally love and they know that they can say some weird things to me and I’m not going to judge them, but we’re going to talk about it, right? So having those people right where they need to be, I think is important. And sorry, Roger, I cut you off.

 

Roger Crouell (46:28)

No, no you you good because I believe in that arm. You need some people that are really get in your your When you mess up you need somebody that really gets and say look pull your coat tail get back. What are you doing? Because there’s times you were with people They were dream stillers Everything that come up there was a talk. They’re still your dreams You can’t do that. You ain’t no mountain and I can see that’s that negative thing

 

But then when you start evolving, you start committing yourself. You want to be one that’s supporting you, because if you were around five million now, I guess you’re going to be the sixth one.

 

Dr. Mo (47:07)

Bingo.

 

Roger Crouell (47:09)

So you stay with the people that’s running with you and like -minded.

 

Whitney | She/Her (47:14)

Yeah, yeah, absolutely. One thing, and I know Dr. Moe, we did talk about this, and I do remember your car analogy. I listened to a podcast like a year ago, I think it was on We Can Do Hard Things with Glennon Doyle, and I don’t remember who the guest was, but the message I took away was intentionally investing my time in people. Who do I want to give my energy to?

 

Who do I want to invest and care about? And that has really been at the forefront of my mind and has helped me to kind of let go of some relationships that I was holding on more for nostalgia than anything. And to really be able to say, wow, yes, I am choosing to have this person in my life because they support me, because they call me on my crap, because of X, Y, and Z, and being very aware.

 

of how I’m interacting with people.

 

Angel F (48:16)

Most definitely. It can be so hard when we love and care about those people who have been around forever, but they’re the ones stacking on the negativity. Or the people who just take from you with nothing to give, whatever that take may be. And I struggled for so many years with setting boundaries within relationships. Like I’m not ready to give you up yet, but…

 

Dr. Mo (48:17)

Love that.

 

Angel F (48:44)

This is what I’m willing to deal with today. And if you exceed that, then for right now, I can’t move forward with you. This year specifically, and I don’t know what it was, I guess I got tired of being sick and tired, I don’t know. But I finally had to put some relationships to the side as well and say, every time you speak to me, every time you come into my life, I feel

 

this way. It doesn’t matter what they said. It could have been positive. It could have been negative. It didn’t matter. It impacted me negatively. All of it. And I actually didn’t even take the time to speak to that individual. I took the passive aggressive cop out mode and I didn’t answer the text and I didn’t answer the calls and I didn’t answer the text and I didn’t answer the calls and then I answered and I said, I can’t. And in this case I can’t, but really I’m done. I’ve hit my wall and

 

It took about six months, but somehow the communication stopped. And, but for that six months I held my breath because I was just waiting. And, and had I set that boundary years ago with that individual, then I would not have allowed myself to be so negatively impacted by them because whether they knew they were impacting me or not, I didn’t let them know. So how are they responsible for it?

 

Whitney | She/Her (50:05)

Yeah.

 

Dr. Mo (50:05)

Mm -hmm.

 

Angel F (50:07)

Right? Like, they may not realize that that behavior is inappropriate. They may not realize that that level of aggression or however it is they’re coming off you is harmful. I never set the boundary. I never set the expectation. And I treated, I taught them that what they were doing was okay because I continued to accept it.

 

Whitney | She/Her (50:28)

Yes.

 

Dr. Mo (50:29)

That’s a hard realization. Good for you though.

 

Angel F (50:31)

BANG! I still cringe when my phone rings. I’m like, Lord, don’t let it be down.

 

Dr. Mo (50:40)

So one thing I want to add to this about limiting beliefs is something that I see that is difficult for myself and I know difficult for other people that I’ve talked to that are in recovery is to celebrate. And I’m not sure why.

 

we can’t celebrate ourselves as well as we should, right? And like, what does that look like for chasing goals? So a lot of people that I see that are in academia that are kind of like chasing the next goal, right? Maybe it’s bachelor’s degree, then master’s, then PhD, whatever this looks like, they’re goal chasing and they don’t stop to celebrate. I know I didn’t really stop to celebrate. And I think that we do ourselves a disservice, right? And if there’s anything I learned from Hockey is that we got to celebrate every goal, right? We got to celebrate every single goal that we make. And so how can

 

Can we give some advice to people to celebrate their goals? How do you celebrate your goals?

 

Roger Crouell (51:31)

Me myself I I I do you know me every little small win You know me you separate said you know me you did I you validate yourself you don’t look for other people to validate you You know, you look at the memory, you know, hey did I let’s get to the next phase now and you do you take time to breathe? And then you say okay. I did that stretch that all that go to a next one And this is key one because we need somebody to tell you can’t have it that we can’t

 

Angel F (51:32)

fail. I know.

 

Dr. Mo (51:44)

Absolutely.

 

Roger Crouell (52:00)

See, I’m a big worry. You tell me you can’t, I’m going. Cause it’s a little transparency because of the crime in 93. They told me, okay, you can’t have, you can’t take the state exam. You can’t get your license in therapy. So now you just gave me something to shoot for. You, now you really got me wired up now. So yeah, but that’s the next thing.

 

Dr. Mo (52:03)

Hehehehe

 

Whitney | She/Her (52:23)

Yeah.

 

and I gotta say it.

 

Roger Crouell (52:27)

Validate the small things, but validate the small things as Dr. Moses.

 

Whitney | She/Her (52:33)

I love it. Like, I heard you, Angel, say that you’re like me, you don’t do very well with that. I’m gonna have to work on it. Cause we’re giving the message, then you’re bragging and you’re conceited and this and that. Well, if we do something awesome, I like the idea of giving ourselves credit.

 

Dr. Mo (52:55)

I agree.

 

Whitney | She/Her (52:55)

So.

 

Angel F (52:56)

Like Dr. Moe, I celebrate everybody else. I do. But I feel like my goals just aren’t big enough. They’re not worthy enough. But not only that though, let’s think about back to the expectation, right? Let’s think about when we celebrate ourselves and we present ourselves and our accomplishments, then people are looking at us to continue to excel. And let me tell you something, I fail along the way. This is not.

 

Whitney | She/Her (52:58)

you

 

Angel F (53:22)

you know, one fell swoop and I did it great. There’s struggles and failures along the way. And I’m okay with talking about them with people who need to hear them, but I don’t want everybody to hear about them right now. Like, let me just fail real quick. And then once I get past it, like way past it, you know, then we can talk about that. But I just struggle to celebrate myself because I feel like, well, I should have done it anyway.

 

I should have already achieved that goal. So if I talk about it now at 36, then I’m too old to be excited about the fact that I did that because, well, had I had my life together 12 years ago, I would have already done this.

 

Whitney | She/Her (54:00)

And here’s where I’m going to pull what Dr. Mo said earlier. Would you say that to someone else? Would you say that to someone who’s just achieving their recovery? Heck no, you wouldn’t.

 

Angel F (54:06)

Don’t!

 

joy on their rooftop with a megaphone in front of their neighbors. No, not really. That’s a little extra. You don’t want to give out their business before they’re ready. But no, like my coworkers too, man, I’m the first one to be like, my God, I’m so excited for you. Can we tell people?

 

Whitney | She/Her (54:27)

Yeah. that’s so funny. Well, we’re getting close to the end. And so a few things before we sign off. I knew we were going to get on a roll and it was going to be hard to wrap up and that it was going to go real fast. And it did. But I want to ask each of you and I’ll even pose it to myself. What is a book, a movie, a show, a video, whatever type of media that you think

 

everyone should go and check out. And it can be related to Mindset or it can be some other meaningful type of media to you. But what would you like to share? And while you’re all thinking, I’ll go first. I had one and then during this conversation I was like, I have a better one. And I’m going to tell everyone, check out the poem, It Couldn’t Be Done by Edgar Albert Guest. And anyone who resi –

 

resonated with the idea of the word can’t, it needs to be thrown out the window. You’re gonna love this poem. I’m gonna kick it over to Dr. Mo.

 

Dr. Mo (55:32)

So I have two because I’m extra like that

 

So my first one is that I, like I said, I was a little pessimistic, like my son has kind of traveled through and my mentor that I met just by happenstance turned me on to the book, The Secret, and it really showed me how to use positive mindset. And it’s really propelled me into a lot of great ways. You can find it free on YouTube. You can listen to it. I think there’s a movie. There’s all sorts of things, right? Like you don’t even have to go out and buy it. But it is a great book to kind of help you better understand what

 

you know, positive mindset, how to shift a little bit. And then I already brought up Adam Grant’s Think Again, and I would recommend that to anybody all the time.

 

Roger Crouell (56:18)

Well, me myself, Sylvester Stallone has done some great work. If you go back and look at the Rambos and Rocky movies, it’s the battle of resilience and a change of mindset. So look at those movies. There’s a message in there.

 

Dr. Mo (56:33)

Nice.

 

Whitney | She/Her (56:38)

like that.

 

Angel F (56:39)

on the same page because I surely was not thinking about good literature at all or a good podcast or anything like that. One of my favorite movies from childhood was Forrest Gump and it took a listen. We all know and everybody laughs at Forrest Gump but let me tell you something that little boy if you watch the movie you know his life was trash. It started off trash and everybody doubted him and he listen he may legitimately have been slow maybe his character had him mentally a little slower.

 

But he was resilient and he stuck it out and he carried big old Bubba. Okay, let’s be honest. Through Vietnam with a bullet in his backside. All right. And then he came home and he watched Jenny do all the things that Jenny did. And then he still got Jenny in the end and he got the dream that he had from day one. And everybody just thought that he was just worth nothing and he wasn’t gonna make it. And…

 

Whitney | She/Her (57:15)

Yeah.

 

Angel F (57:36)

He was the happiest man in the world to sit by his wife who was dying just to know that she had, he had her and he had accomplished all these things that people thought he couldn’t do. So the next time you feel like you can’t just keep running. Maybe not literally because we know we got to buy new shoes if we do that too much, but just keep running. I mean, it’s fine. You’ll get there somewhere, wherever there is you’ll get there. It’s okay.

 

Whitney | She/Her (58:03)

I love it. So wrapping up, connecting with me or Dr. Mo, you can do that through all of the Straight Up Care profiles as well as at Syndicate 12. Angel, where can people connect with you?

 

Dr. Mo (58:04)

You’re beautiful.

 

Angel F (58:21)

gosh, if you make me say it out loud, I’ll fail.

 

But I’m on the Straight Up Care website. You can find my profile. I’d love to see you there. I do have a YouTube where I post up videos every single morning. I do it on LinkedIn too, but it’s Rise and Thrive Peer Services if you just wanna see a little snippet of a video. But if you’d like to see me, see me, you can find me on Straight Up Care’s website.

 

Whitney | She/Her (58:48)

Great. And Roger, where can people find you?

 

Roger Crouell (58:53)

You can connect with me at rogercruz .pittspecialist .us or straightupcare .org.

 

Whitney | She/Her (59:02)

Great. And so we are going to continue doing this episode or a segment of Reduce the Stigma Unfiltered every month. And whenever we pick a topic, we want to hear from you. So if you have an idea as to what our next topic should be, go on over to syndicate12 .com. We have a list that you can upvote the topic that you want to see in July, topics you want to see in August.

 

Head on over to Syndicate 12, see what we’re up to. Head on over to Straight Up Care to receive amazing peer services from people such as Angel and Roger. So many people out there that are ready to support you wherever you are and whatever you’re dealing with. Thank you so much for joining us today. Angel, Roger, you too. Thank you. You are amazing and I love this.

 

Roger Crouell (59:55)

Thank you.

 

Angel F (59:56)

Thank you for having us.

 

Whitney | She/Her (59:57)

and everybody have a wonderful evening.

 

Angel F (1:00:00)

You’re welcome. Thank you. Bye.

 

Roger Crouell (1:00:00)

Good night.

 

Dr. Mo (1:00:01)

Yes.

 

Roger Crouell (1:00:03)

Good night.




Reduce the Stigma: Unfiltered – Kicking Off the Conversation on Mindset The inaugural live stream of “Reduce the Stigma – Unfiltered” dives deep into mindset. From self-limiting beliefs to daily practices and cause for celebration, this episode delivers valuable insights into how to harness your mindset to overcome challenges and thrive.  Links Angel Fuller: angelfuller.peerspecialist.us […]

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Reduce The Stigma logo with a picture of the host Whitney Menarcheck, a white woman with short brown hair, and guests Amaranthia Sepia, a black woman with long dreadlocks wearing glasses and a headband, and Claire Jones, a black woman with a red head wrap and red glasses

Breaking Down Barriers: Accessibility and Healing Art for All

The Mother-Daughter Duo Making Art Inclusive

Amaranthia Sepia, a black woman with long dreadlocks wearing glasses and a headband, and Claire Jones, a black woman with a red head wrap and red glasses
Swirling colors and a quote about accessibility from an interview discussing art healing accessibility and invisible disabilities

Meet Claire Jones and Amaranthia Sepia, the mother-daughter duo leading Sista Creatives Rising. The mission of Sista Creatives Rising is to empower marginalized women and marginalized genders through art creation and accessibility. Claire and Amaranthia, who both have invisible disabilities, prioritize showcasing art that deals with mental health, disability justice, race, gender, and the LGBTQ+ community.

The episode details Claire and Amaranthia’s personal stories and the intergenerational trauma they have experienced. They discuss how art has been a healing force in their lives and how they want to share that healing power with others.

The article highlights the various aspects of Sista Creatives Rising:

  • Art and Mind: A biennial virtual event featuring documentaries, short films, artist talks, and mental health professionals.
  • Sistas Uprising Fund: A micro-grant program that provides financial aid to marginalized artists.
  • 3D Virtual Gallery: A fully accessible online platform showcasing the work of marginalized artists.
  • Self-Description: An emphasis on inclusivity by including detailed descriptions of the people involved in the project.

Click here for the episode’s full transcript.

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Transcript

Whitney Menarcheck | she/her (00:01)
We have a great episode for you today. Sista Creatives Rising is a project and concept and really can be thought of as a movement founded by black invisibly disabled mother daughter duo, Claire Jones and Amaranthia Sepia. The mission of Cisa Creatives Rising is to help creative marginalized women and marginalized genders gain accessibility and visibility in the arts to facilitate personal healing. Using their own experiences with trauma, mental health, and the power of art and creativity to heal, these incredible ladies are centering marginalized artists and creating an accessible community of healing through art. Stay tuned and get ready to be inspired as we reduce the stigma.

Whitney Menarcheck | she/her (01:55)
Hello and welcome to Recovery Conversations. I’m your host, Whitney Menarche. I have brown hair and I’m wearing a black t -shirt with the words reduce the stigma on it. Today’s conversation is with Claire Jones and Amarynthia Sepia, a mother -daughter team and creators of Sisa Creatives Rising. The mission of CISA Creatives Rising is to help creative, marginalized women and marginalized genders gain accessibility and visibility in the arts to facilitate personal healing. Claire and Amarynthea, thank you so much for joining me today.

Amaranthia & Claire – Sista Creatives Rising (02:28)
Thank you so much. Thank you for having us. Yeah.

Whitney Menarcheck | she/her (02:32)
So a mother daughter daughter duo, this is really exciting for me to get to speak to you both. I haven’t had this kind of guest before. And I’d like to start with if we could learn a little bit about each of you individually.

Amaranthia & Claire – Sista Creatives Rising (02:45)
Yeah, so we’ll do our self descriptions. I could go first. You go first. Yeah. So I’m Amaranthia and just a quick description of a self ID or self description is like for accessibility purposes. And so we always like to do that with every podcast we’ve been on recently. And so I’m a 24 year old young black woman and I have a large headband on and it’s black and white striped. I have long black locks or dreadlocks and they’re off to say the left side of my face. And I’m wearing a red turtleneck and a black and white kind of sheer, let’s say like a long sleeve shirt, open shirt with like a golden zipper behind us. It’s a white wall with some decorative fabrics, red, black and white patterned fabrics and some Japanese art decor on the wall and some fake flowers. Sunflowers. Yeah, sunflowers and vines. Yes. Hi, I’m Claire. I am a 61 year old black woman. I’m wearing large red framed glasses with a gold chain and I’m wearing a Kente African head wrap. I’m also wearing a brown necklace, a long brown necklace knotted, which is knotted. And I’m wearing a smaller necklace with red hearts, a black shirt. And I, I, did I say I’m wearing a black shirt? Yes. And that’s it. Yeah. And we both have glasses. Hers, hers are red. Mine are like round and clear. But yeah.

Whitney Menarcheck | she/her (04:37)
Thank you. And how about, I want to come back to the self description, but first, why don’t you tell us a little bit about who you are and then we’ll get into really the work you’re doing.

Amaranthia & Claire – Sista Creatives Rising (04:50)
Yeah, so at Cista Creatives Rising, as mother -daughter duo, we are both disabled. We have invisible disabilities. We both have complex PTSD, agoraphobia, and panic disorder. And we’re also now navigating the fact that I’m learning that we’re neurodivergent as well. And just kind of working with our therapists and doctors on like what that means for us and…It explains a lot of how we interact with the world. And yeah, with Cis of Creatives Rising, like in your introduction, we highlight marginalized women and marginalized genders who are creating art that isn’t usually seen in galleries because maybe they’re doing something that’s non -traditional. It’s not fine arts. They’re talking about issues that maybe are seen as taboo, like mental health disability, disability justice, talking about race, gender, you know, the LGBT community, etc. So we’re trying to bring awareness to these stories that aren’t seen and heard, that they tend to be rejected, and give them a platform and pay these artists as well, with the help of our sponsors to create documentaries and virtual galleries. We have a 3D virtual gallery. We create through Coons Matrix and you could completely walk through it. It’s like VR but without the headset. And we hold this event called Art and Mind, which is every other year. The next one will be next year. The last one was in October. And we showcase these documentaries, these short films, and have therapists speak. We have mental health professionals. We have disability activists shared our stories while we showcase and celebrate these artists and give back. We raised funds. Our last show we raised like $1 ,453, I think. The goal was a thousand. Yeah, the goal was a thousand. That’s the first time we ever reached a goal for anything. And so we used that to fundraise for our Sisters Uprising Fund, which is our new micro -grant program. And so we’ve, we’re getting ready to, we’ve selected our finalists. We’re just getting ready to pull them together.

Whitney Menarcheck | she/her (06:57)
Wow.

Amaranthia & Claire – Sista Creatives Rising (07:15)
And each finalist, which will be eight, will receive 200 each. So they’ll be in this gallery and they’ll be able to use those funds for their art or paying bills, medical bills. And we plan each time when we do Art in Mind to increase that amount. So it’s really exciting for us. So this is a long held dream, but yeah.

Whitney Menarcheck | she/her (07:40)
absolutely incredible. You have so many things going on, and the accessibility commitment is really prevalent throughout. And I’d like to start there, you know, this is the first time that I have done any sort of physical description of myself when introducing, and that was because I have watched your videos and I saw that that was something that you really encouraged. And could you share with us what that act, what being, what sharing those descriptive details does as a way of increasing accessibility?

Amaranthia & Claire – Sista Creatives Rising (08:19)
Yeah, yes, if you hear a tiny little mew mew in the background, that’s our kitten Mina. Well, cat. Yeah, yeah, I call her kitten. She’s five years old, but she acts like a kitten. Yeah. Yeah. Exactly. Yeah. So, so the question was, what, why is it important to?

Whitney Menarcheck | she/her (08:31)
My five -year -old dog still acts like a puppy, so I understand. How does it help with accessibility by providing that description?

Amaranthia & Claire – Sista Creatives Rising (08:45)
Well, as people with invisible disabilities, we realize the importance we are living in an able -bodied world. So living in an able -bodied world, everything is catered to that mindset. And we realized for a long time that we had these challenges, but we didn’t know what they were until Amaranthia, I don’t, is in 2021 when we joined Painted Brain, which is an organization in a nonprofit organization in California. And we were a part of their show, Discovering a Place for Us. And they really helped us to hone into what these indivisible disabilities were and how important it was to,

Whitney Menarcheck | she/her (09:21)
Okay.

Amaranthia & Claire – Sista Creatives Rising (09:44)
To talk about them. And so we realized that, wait a minute, we have these invisible disabilities. And we met a lot of people who were, who had the same, who were going through these same issues. So we realized that if we want to do, create art and talk about art, share our stories on what we were going through, that in this able -bodied world, in…order to open that conversation, we would have to do art that was accessible. And then we did a course, a course back in the fall of 2021, and that opened it up for us to understand how we would go about to do it, how we would create this grassroots organizations, which in that course we called Sister Creative, we came up with Sister Creative Verizon. And it was there that we began to have this concept and further build on making sure that everything was accessible because we realized there were people that were viewing this work and they were not able to really see them, feel themselves or see themselves because there wasn’t, there weren’t any, a lot of people don’t represent their work from that perspective. So we began to share the work and do captions and everything like that because we realized that a lot of people have these invisible disabilities. And it was important to incorporate it in our work if we were going forward to continue to share our story and to get out this message. Yeah. And with the self ID, we actually learned about that because I did. What was it? It’s like a virtual residency and it was called Socially Distant Art. And it’s catered to disabled artists, but also like non -disabled artists to learn about accessibility and melding it into our art and like our process of creating. And they talked about self -idea as like one of the first things. So we had to describe ourselves because we had some members who might be blind. We also had some members who might be deaf as well.

Whitney Menarcheck | she/her (11:55)
Yeah. Mm -hmm.

Amaranthia & Claire – Sista Creatives Rising (12:09)
And so we had to learn about ASL and incorporating that into our events and stuff. And so we realized that this was so important that sometimes people cannot see what you’re showing on the screen. And, and it also helps them when they’re listening to something that if they have an idea of what you look like, they can imagine you or have a better understanding of your background, like who you are. and I think it just creates a deeper.

Whitney Menarcheck | she/her (12:35)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (12:38)
Connection. So I think I hope that through what we do, that we can help more people understand like why it’s important. Yeah, bridge that gap. And we learn as we go because we don’t know everything about this. We’re discovering it as we go. Every day we’re learning, every day we’re learning something new. And last year, we learned that some people, people who have autism, you need to be careful when you put up the videos.

Whitney Menarcheck | she/her (12:56)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (13:08)
because if there’s too much movement, too much – Or if a video is on auto – auto – Auto, yes. Yeah. So that could cause a problem. So then we realized we had some videos on our website that was doing that. We were like, we went and we fixed it. So as we go, we are learning things and as we learn them, we’ll adjust to suit because, you know, it’s, it’s a new area. So it’s very, it’s very challenging sometimes, but it’s –

Whitney Menarcheck | she/her (13:28)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (13:36)
It’s amazing every time you break through and you learn something new.

Whitney Menarcheck | she/her (13:41)
And isn’t that what we all need to be doing is constantly learning how to make ourselves and our spaces more, I hate to use the word accessible, that’s the best word, but more inviting and more, you know, and so I imagine, you know, the learning is going to continue. And I know I learned from you the importance of that self description. And now I’m going to be thinking of that in a way that I never had before.

Amaranthia & Claire – Sista Creatives Rising (13:54)
Yes. Yes. I’m so glad to hear that. Yeah, that’s exactly why we do this work, you know.

Whitney Menarcheck | she/her (14:15)
Right, so tell me more about about Sisa creatives because there’s so many different components to it. My understanding is it really came about as a movement for healing. Can you share a little bit about that?

Amaranthia & Claire – Sista Creatives Rising (14:31)
Mm -hmm. Yeah. Yeah. Do you want me to go first? Well, it started with, I, this is Claire and I was born into domestic violence in Barbados and for a long, long time, all my life, pretty much, I don’t know if you know about the V8 ads there in 2012, there were these, if you didn’t get your V8, which was the tomato juice drink. It was like early 2000. Yeah. And.

Whitney Menarcheck | she/her (14:55)
Now. huh.

Amaranthia & Claire – Sista Creatives Rising (15:03)
there was this ad that if you don’t get your V8, you would always be walking to the side. Everybody’s walking straight up, but you would always be walking to your side. But as soon as you got your V8, you came back straight up. So that was my life. I felt always like I was slanted in my life throughout my life because I had this.

Whitney Menarcheck | she/her (15:09)
Okay. Haha. Okay. Yeah.

Amaranthia & Claire – Sista Creatives Rising (15:24)
Stigma of domestic violence following me all my life and I never felt I would amount to anything but I would always challenge it and I would break through. I would try, constantly try breaking through all these challenges and my mom was, my dad was violent to my mom when I was in the womb so it was just a part of who I was and so as I came into the world and I got older I promised that I would help my mom. I would make it and I would help my mom. And so Sister Creatives came from, I went through a lot, a lot of changes, made a lot of mistakes, but that remained that long held dream of doing something that would help marginalize women, which I didn’t even know the word marginalize at that time. I only knew that I wanted to help my mom and women like her and like myself. And so when my daughter was born and she came into the world, I…had done all this research from going to Mount Holyoke College as a Francis Berkman scholar. And I had also converted to Buddhism, which helped me view life from a different perspective, from a more Eastern perspective. And so I started to look at life in a different way. And I had the opportunity to go into Mount Holyoke to pull everything together. And I went back to, I got a research grant, went back to Senegal, West Africa to the slave houses off the coast of on the island, Calgary. And I stood at that door where the slaves were sent off and they never saw their home again. And I, for me, it was that moment that things came together for me because I was standing in that wound that was never healed. Has never been healed in a person like me, you know? And so I decided that I would fight against intergeneral the legacy of intergenerational abuse. And so that is where this came from. And the healing, when Amirati was born, the healing continued with her. And now my mom is gone. She’s not here. My whole family’s gone. They’ve transitioned. I’m the only one left. But now Amirati and I are doing the work that I promised myself that I would do. And that’s where this, what this is all about. That’s where it came from. And then when I got cancer in 2022, and I almost lost my ability to walk. That was when I realized I have to get up and do it. I can’t wait anymore. Yeah. Yeah.

Whitney Menarcheck | she/her (17:59)
That is incredible. A couple episodes before you, we actually have a historical trauma specialist, and she was just talking about how the trauma doesn’t always start in your generation, that intergenerational trauma, and that you sometimes have to go back several generations to the initial event, such as slavery.

Amaranthia & Claire – Sista Creatives Rising (18:12)
Wow. Yes. Mm -hmm. Yes.

Whitney Menarcheck | she/her (18:28)
And, you know, and so it’s just my mind is kind of like, how amazing to have that conversation, then I’m hearing your story, I’m getting to witness your story. And it is so reflective of that. And now you’ve taken generations of trauma, of discrimination, and your own experience, partnered with your daughter and created a movement.

Amaranthia & Claire – Sista Creatives Rising (18:39)
Yeah. Yes. Yes. Yes, and it’s called, our slogan is called, is bridging gaps to the past, the present, to the future, and that represents the journey. So I’m bridging the gaps, I went back to understand the slavery, and then to the present, you know, I learned about myself and started my recovery and my haven, and the future rests in my daughter. I’m 60, she’s, I’m 61, she’s 25, and so we’re doing this work so that…

Whitney Menarcheck | she/her (19:06)
Wow. Mm -hmm.

Amaranthia & Claire – Sista Creatives Rising (19:24)
She can push forward into the future and I don’t have to worry anymore about all that stuff because I’m not living there anymore. Yeah. You know, I’m healing and doing better.

Whitney Menarcheck | she/her (19:33)
Mm -hmm. Yeah. And so here is this, like, I’m just imagining this visualization of all of this coming towards you, Amaranthia, you know, all of this family history, and then you’re, I’m not sure who kind of had the first thought. What were you thinking when your mom, or maybe it was you who had the idea, how did you two come to the decision of let’s make it in this way? Let’s create this project.

Amaranthia & Claire – Sista Creatives Rising (20:03)
Hmm. Yeah, it’s been a long term, like long time coming, I would say, because when I was born, I had a lot of health issues and we couldn’t understand what was going on. And it got worse because of bullying I was experiencing. And I originally lived in Japan. We lived in the US and then we went through an expat opportunity for my dad to go to Japan and we lived there for like two and a half years and that was kind of like my foundation of going to Japanese international school. And so that along with being Buddhist helped. Practicing Japanese Buddhism specifically already before going there heavily influenced me as like a four to six year old. And I was around a lot of diversity and art, the art was everywhere and I was immersed in Buddhism and Shintoism. And so when I came back, I was just totally enamored with art. I was already creating because my mom would always have a lot of artistic stuff around me as a little kid. And when I came back to the US, was at 2006 and I started having to go to public school, the bullying began and I started experiencing really severe racial trauma and just feeling like something’s wrong, I’m not fitting in and I couldn’t understand what I felt something was wrong with me. And it just kept escalating, escalating and eventually we moved to now we’re in New Hampshire and we’ve been here for what, about…15, 16 years now? Yeah, 15, 16 years. And we were originally in Connecticut before we moved here, when we came back to the States. And the bullying kept escalating and I just created, kept creating and art was my only friend. And so my mom saw that and she showed my art to my art teacher at the time at the elementary school and said, hey, you need to look at this and look at what this kid is doing. And he thought…thought, wow, this is really amazing. This could be very healing. And he created this art show at this weekly meeting we’d always have at the school called Town Meeting. It was like every Friday. And that was their first art showcase. And then kids started talking to me. And I realized, like, wow, like art is healing for me. And I think at that time I was like 10 or 11. And once I got into middle school, it kept getting worse. And eventually I left middle school because of the bullying, trying to do this anti -bullying project called Do I Know Who I Am? But because it was addressing these issues and stigma and race and gender and all these different things, I was seeing these kids suffering like me. The school didn’t want to address it, so ultimately I had to go to a virtual charter school called Villex. And from 13 to 18, I was in recovery trying to figure out health issues and what eventually got diagnosed with you know, complex PTSD and panic disorder. And for that whole time, I created this, a new version of that project called I’m Proud of Who I Am and started doing these, this tour with my mom and the local artists. I got a scholarship at a local school called Kimball Jenkins and it was a, it’s an art school. And I worked with one of the adult artists there to share my story through these shows that were going to different libraries. In different towns in our county and so I did that between the ages of like 14 and 16. And that was my way of talking about kind of taking what my mom did, addressing these issues around trauma and mental health through the arts and a way for me to heal while also trying to encourage other kids and their parents like, hey, art is healing and that we need to hear these stories. And this is a great way for people to learn who they are and so through that and going navigating for my mental health journey and having to constantly self advocate, I realized that, wow, we can take this concept and do something more with it. And so like my mom said, we did Painted Brain, I did some other shows. I started doing stuff as art coordinator, like as a volunteer when the pandemic hit. And we were like, you know, let’s do our own thing. Let’s do something like I’m proud of who I am again. But we’ll do it completely, you know virtual. And we, that was the first Art in Mind show in 2021. And from there, we were like, we need to do something more than Art in Mind, maybe create like Art in Mind, but then have stuff surrounding it that, you know, supports it. And that’s where this concept for Sister Craigs Rising came together. So yeah, so it’s a long story, but basically, you know, what was really important was that she was losing her voice as she got sick.

Whitney Menarcheck | she/her (25:06)
Okay. Hmm.

Amaranthia & Claire – Sista Creatives Rising (25:20)
Her voice was leaving and I was like, I had already done something like this for my last project at Mount Holyoke where I did a play called Shadows of Udo and shared my story and gave back to the community. And I was like, wait a minute, if I’m going to give this to my daughter. And so I kind of used that concept of that play writing, that play that I did and said, use your art to tell this story.

Whitney Menarcheck | she/her (25:42)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (25:49)
And I just started to archive everything she did and frame everything through going to Michael’s and all these different, and I framed everything from our pocket. And she had art shows all over the place from just this concept. And so that’s where the seed of this thing started to burst open. But I didn’t know that I was headed to here, to this moment. I didn’t know that I was…

Whitney Menarcheck | she/her (26:14)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (26:17)
Doing Sister Creatives Rising until that course that we did at the end of 2021 really coalesced everything. And then when I got sick and was in the hospital, I realized I can’t self -sabotage, I can’t do this anymore. And the important thing that I need to say that, remember I told you that how I was, my mom had been, violence was, my dad had been doing violence against my mom when I was in her room? Well, and then I realized later that I had passed that on to Emirati and my mom had passed on that stress in the womb to me because when Emirati got sick at 13, I had a salivary test done and it showed our cortisol levels and both of them were almost flat line, the exact same. And that is when I realized this is a representation of what they talk about with Black women having stress in the womb.

Whitney Menarcheck | she/her (27:14)
Mm -hmm.

Amaranthia & Claire – Sista Creatives Rising (27:14)
She showed up the same cortisol level as me. And so I realized that that is probably what showed up. If my mom had done that, I would have seen it years before that hers was like mine. And so I realized that I had passed on this stress and everything to my daughter and that was a part of her illness. And so this is all what we are coming to term with now in, as we navigate this new life.

Whitney Menarcheck | she/her (27:23)
Great. Yeah. Yeah. So processing making sense of it while also providing what’s helping you to others.

Amaranthia & Claire – Sista Creatives Rising (27:49)
Mm -hmm. Yes. That’s basically it. You got it. In a nutshell. Yeah. Yeah.

Whitney Menarcheck | she/her (27:52)
Well, I think I’m at a loss for words because how amazing is that to be able to help others in general. But it demonstrates that we are always still like a work in progress, just like we’re always going to be learning how to, you know, be more accessible for others and things like that. And then to share what’s working.

Amaranthia & Claire – Sista Creatives Rising (28:08)
Yes. Mm -hmm.

Whitney Menarcheck | she/her (28:18)
And the community that I imagine that builds of people who are finding support and hope and healing through a common medium.

Amaranthia & Claire – Sista Creatives Rising (28:30)
Yes. Yeah. Yeah. And the amazing thing about the pandemic, I, in Buddhism, they always taught us to look for the light within everything. No matter how bad something looks, there’s always a light. So in everything I do, I always look for the light. So in the pandemic, the light was this beautiful creation of learning of Amaranthia. We didn’t understand why she went to virtual school before. We were able to take that.

Whitney Menarcheck | she/her (28:41)
Mm.

Amaranthia & Claire – Sista Creatives Rising (28:58)
And create this platform, this virtual platform, because no one wanted to give us a chance. No one wanted to help us. And so that’s where we were learning that galleries, people like that don’t want to learn about this work from marginalized artists like us. So that’s why we created this platform, because we knew firsthand that they’re not going to look at our work. And we were like, well, we are going to show our work while showing others, because no one is going to do it for us. So why not create?

Whitney Menarcheck | she/her (29:05)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (29:28)
This whole platform. And so we are pioneering this new effort for marginalized artists and while we, and we’re putting out the work that we have had in our computers all these years as well. Yeah.

Whitney Menarcheck | she/her (29:42)
And so let’s talk about that platform. So you’ve had the gallery. It’s all virtual. And I imagine that means that you’re able to connect with people that otherwise would have no opportunity to access. And what’s it like? So is it tell us more about accessing the gallery and some of the other programs going on?

Amaranthia & Claire – Sista Creatives Rising (29:49)
Mm -hmm. Exactly. Exactly. Yeah, so with the Art and Mind show, like if you go on our website, we’ll have, we have like a main page on our site about Art and Mind and describing like how it came about and the 2021 show and the 2023 show. And on the, there’s a sub page for the 2023 show, which is called I Know Who I Am, Journeys of Women of Color and Fem Expressing Creatives. And that was…kind of part three of that anti -bullying project, I’m proud of who I am and do you know who I am. And you can see the gallery completely embedded. So if you go check it out on like a laptop, you can just look at the gallery through our site and it’ll do a guided tour. Again, it’s through Kuhn’s Matrix and I wish I believe it’s a German company and you can just interactive all the art pieces and we always make sure to do each art piece has like a image description so you can click on it and it’ll describe what it looks like you can read that and Learn more about the artist just like you would a regular gallery. So you’ll see it on the walls Sometimes there’s there’s music playing there’s music playing in this one by composer we worked with named Mel Chilianis who’s Australian artists disabled artists and Yeah, it’s just really, really cool because our first show was, it wasn’t the best virtual gallery. We were working with a local gallery, or gallery in Massachusetts, not local, but near us. And unfortunately, it disappeared. They took down the gallery and we’re like, my gosh, how are we going to do this? Do we need to partner with something else? But we realized for working with Coons Matrix, we’d be able to control how we want to present it and control how…

Whitney Menarcheck | she/her (31:52)
So… Mm -hmm.

Amaranthia & Claire – Sista Creatives Rising (32:03)
like make sure that everything is captioned. If we want to show a video in there, if we want to have an image description, you can even put sculptures in there, which we haven’t tried yet. You could do like a 3D scan. Yeah, so it’s really, really, really cool stuff that you could do with the site. And so it allows us to completely like, you know, take like an amalgamation of different things, you know, using Zoom for art in mind.

Whitney Menarcheck | she/her (32:15)
Fascinating.

Amaranthia & Claire – Sista Creatives Rising (32:28)
using Coots Matrix for the gallery, using Give Better for the fundraising and the tickets and everything. And combine this into one platform that aids us in getting to these artists. Yeah. And then we have this section where we are going to be doing workshops. We are beginning to do workshops talking about what we do and how, you know, keynotes. We are now working on our keynotes and building out those.

Whitney Menarcheck | she/her (32:56)
Mm -hmm.

Amaranthia & Claire – Sista Creatives Rising (32:56)
So many things that are going on and we are going to develop a Ko -fi page where I’ll probably… Or coffee? Coffee. Coffee or Ko -fi? Ko -fi, I can never say it correctly. But we will be doing a bunch of different things there. We have a donation page if anybody wants to help us with getting out to work, with our work. It’s a whole bunch of things that we are able to do. Yeah.

Whitney Menarcheck | she/her (33:06)
Hehehe

Amaranthia & Claire – Sista Creatives Rising (33:23)
And we’re doing this, not as a nonprofit. A lot of people think we’re a nonprofit. We just apply for grants and we keep moving.

Whitney Menarcheck | she/her (33:31)
That’s amazing. And when will be the next gallery opening?

Amaranthia & Claire – Sista Creatives Rising (33:39)
So the next one is for our Sisters Uprising Fund. The first Sisters Uprising Fund. Yeah, the first Sisters Uprising Fund micro -grant recipients. So they’ll have, it’ll be those eight artists. We just had an open call from, when was it, from, was it from March to May? I think so. Yeah, it was March to May, so it was like for over a month, and we had all these artists submit, and we have…we narrowed it down to eight and these artists will be similar to Art & Mind. So they’ll be in their own gallery on Coons Matrix. And you could see like, there’ll be a video where it will be compiled, like sharing their stories about how these funds will help them this $200 and what they’re going to be using it for. We have some artists who said, we’ll help them with medical bills, with gender affirming care, will help with creating a home studio and…helping with creating a new work or helping with a bill so then they can get to creating more content and bring in a more consistent income. And we’re like, wow, this is, we couldn’t believe people are doing this with 200. This was like a test for us. But it really, wow, you can do that. So people were getting really creative with it. And so…

Whitney Menarcheck | she/her (34:48)
Yeah.Yeah.

Amaranthia & Claire – Sista Creatives Rising (35:05)
This gallery will tell those stories and you’ll see all of these artists, each of them have two pieces each. You get to see, read their bios. And yeah, and then after that we’ll have in what, 20, 25, we’ll have our art in mind virtual gallery again. And we’ll be able to, that’ll be like in the fall of next year. That’ll be after our virtual event, our film event. So, we’re trying to do it so every year we have something going on on Coons Matrix. Yes. And our down years from the show is when we do work on these workshops or work on the Sister Creatives Rising Fund, look for more other ways, other funding, get opportunities. Cause we’re looking for ways to sustain ourselves financially by doing this work that we love and we fought for for so long. We want to be able to do this work and take care of ourselves from it because we’re…

Whitney Menarcheck | she/her (35:38)
Yeah. Mm -hmm. Yes. Yeah.

Amaranthia & Claire – Sista Creatives Rising (36:04)
We’re immunocompromised because of my still in recovery from my cancer journey. And so I am immunocompromised. We still wear our masks because of being immunocompromised, I still wear masks. We are COVID conscious family. And so that’s why everything is vertical. So we’re looking – Virtual. Virtual, vertical, virtual. I’m confused. Yeah, so that’s what we’re doing. Just –

Whitney Menarcheck | she/her (36:30)
Hehehehehe

Amaranthia & Claire – Sista Creatives Rising (36:35)
Building so that at some point we’ll be able to sustain ourselves doing what we love and helping others at the same time.

Whitney Menarcheck | she/her (36:45)
I am excited to have crossed paths with you, because I’m certainly going to be checking out the virtual gallery. When you were talking about hearing those stories or being able to understand people’s stories, I got chills just thinking about, in $200 may not seem like much, as you said, but it does. It really can. And I imagine even just people feeling seen and valued.

Amaranthia & Claire – Sista Creatives Rising (36:54)
Thank you. Yeah. Exactly. It really helps. Mm -hmm, exactly.

Whitney Menarcheck | she/her (37:15)
That probably does so much more even than the $200.

Amaranthia & Claire – Sista Creatives Rising (37:18)
Yeah. Yeah. Some people tell us, wow, I’m so good. When they’ve come to our shows, they’ve told us, wow, if I had never come to this show, I would never know an artist like that was out there because they’re not getting shown their marginal life. So they’re not going to be on gallery walls because most of 80 something percent of the people who get shown are white male. Yeah. And then white female. Especially in New York, we have some like statistics on our site talking about that. Yeah. We have those stats up.

Whitney Menarcheck | she/her (37:29)
Yeah. Right. Exactly.

Amaranthia & Claire – Sista Creatives Rising (37:46)
if people want to check out why we do this work. It’s because we got tired of just being marginalized and not being looked at. And we have talent and the people we showcase are very talented. And so we decided we are going to do something about it. Yeah.

Whitney Menarcheck | she/her (37:48)
Yeah. Yeah. Incredible. And I understand you mentioned like in the down years between the galleries or the big art and mind gallery that you do workshops, resources, things like that. And I understand you have a mental health resource that is available.

Amaranthia & Claire – Sista Creatives Rising (38:19)
Yeah. Yeah. So with so far with the 2021 Art in Mind and the 2023 one, we’ve created mental health resource documents and they’re like a virtual PDF. And the last one we did for the 2023 show, we put it together in Canva and we gave it to the audience members at Art in Mind. And it has articles, two articles written by the featured therapists that spoke at our event. Amanda McGuire, who is a therapist in New Hampshire working with, she’s a Black, like we were saying, COVID conscious, she’s also COVID conscious, amino compromise, Black woman, and she works with clients who are also homebound. And so she created this article talking about how you can find support and stay safe and she also did this talk. And so you’ll be able to kind of get a summary of what that talk was in this document. And it gives a lot of really great advice. And then we have Journey LaFond, who is Black, queer, I believe, non -binary therapist, I think social worker, specifically social worker, also in New Hampshire. And they did an article focusing on the BIPOC, LGBT folks who are looking for support. So those two are in there and then it’s just this large list of different resources for different demographics. I think we even have one for Australia because our work with Mel, the composer, was able to provide that. So yeah, it’s not fully international, but it has so much in there. I think it would be, I think…

Whitney Menarcheck | she/her (40:06)
Yeah.

Amaranthia & Claire – Sista Creatives Rising (40:14)
It was very helpful to our audiences. So we want to be able to continue sharing that.

Whitney Menarcheck | she/her (40:19)
That’s wonderful. Before I get to kind of my wrap up question, let me ask, how do people connect with you? Where can they find you? Find the mental health resource, find the gallery.

Amaranthia & Claire – Sista Creatives Rising (40:32)
Yeah. So we have our Instagram, SistaCreativesRising, and that’s what we’re on most of the time. And so we’ll put out videos about disability advocacy and we’ll put up the stuff about like the work we’re doing, the art. You’ll get like word about the galleries and stuff on there. We have a newsletter on our website, SistaCreativesRising .com. Could sign up there and sometimes they can get early news through that newsletter about our open calls and stuff. I think by the time this interview comes out, we’ll probably have our coffee set up. So if people want to subscribe to us and get early access to open calls or workshops or the Art and Mind tickets when they come up again or…you know, see articles, like articles by my mom about her experience through cancer and disability. And I’ll be also be doing some commissions on there to help with, you know, maybe organizations or artists who just want like a portrait or work for like an event or something if they want artwork for that. So that should be like coffee, Sister Creatives Rising. And our website is in full. Our email is info at sista creatives rising .com and our website is Yeah, our website again is sista creatives rising. So yeah, we’re really excited about the coffee coming together. But yeah.

Whitney Menarcheck | she/her (42:13)
Yeah, lots of exciting things for you. So I always like to wrap up the conversations by asking if people were to only take one thing away from this conversation, what would you like it to be? And I’d like to ask you each to answer that.

Amaranthia & Claire – Sista Creatives Rising (42:34)
You can go first. Okay. Yeah. Okay. So after going through cancer, my journey through cancer, I had decided to come up with this call of action. call to action. Call to action, call, get ahead of life before life gets ahead of you. And what that means is that live your life in dearly consciousness and dearly awareness and don’t wait till something big like what happened to me, a sudden emergency for cancer, a scroll from my spine happened to just decide that you’re going to do what you want to do with your life. Live your life in a preventative, be preventative and cautious, unconscious in the way you live your life. And attend to those drip, drip, drip, drips and don’t let them big to build a big puddle or a big flood. Get ahead of your life before life gets ahead of you. That’s mine. Yeah. And I think for me, it’s talking about the accessibility that I hope that people take from this, that accessibility, it could be a lot to take in because there’s so many aspects of it. But as long as you’re doing it in pieces, and you’re listening to the disability community and you’re understanding that accessibility is more than just for physical disabilities, but also for invisible as well. And understanding that physical disabilities don’t represent everyone. Sometimes it’s more complicated than that. And so doing things like self -ID, captioning, doing image descriptions for like a social media post. Even if you don’t get it perfect the first time, that’s okay. We weren’t perfect at all. We’ve gone through so many different captioning programs. We’re still learning the best way to create image descriptions. Sometimes we miss something in the self ID. What matters is showing that you care and that you’re listening and yet you’re taking information in. And…us, we’re still even like trying to figure out like how can we improve our website. We want to work with accessibility experts so then we can fully make make it even more accessible. So we’re trying to always find ways to learn and so we encourage people to learn and take their time and if you stumble that’s okay as long as you’re communicating to your audience, hey I’m learning, I’m listening and yeah I think I think that’s really important for people to know that it’s okay to…not understand everything immediately.

Whitney Menarcheck | she/her (45:25)
Right. Wow. Well, Amaranthia and Claire, thank you so much for taking time for sharing your personal journey, as well as the journey of CISA Creative Rising and what you’re doing to really reach people, build people up, put people who are systemically and historically pushed aside in the spotlight, giving them the opportunity to be who they are, just sounds absolutely amazing what you’re doing and that it I imagine is having such a huge impact and will continue to do so. So thank you so much.

Amaranthia & Claire – Sista Creatives Rising (45:58)
Thank you. Thank you for having us. Thank you so much. We love this conversation.

Whitney Menarcheck | she/her (46:09)
It’s been a pleasure and I am certainly learning and I took a lot of things from our conversation today and from visiting your website and it will be something that I continue to use as a resource to increase my ability to be inclusive of all accessibility levels. So thank you.

Amaranthia & Claire – Sista Creatives Rising (46:31)
You’re welcome. Thank you. I’m so glad to hear that. Yeah. Be used as a resource. Yes. That’s our goal.

Whitney Menarcheck | she/her (46:33)
Yes, I and Exactly and everybody listening check it out go there. I guarantee you will learn something there are so many interesting videos on the YouTube and just things that you can can learn and Start taking those small steps forward So everybody check out and Maranthia and Claire sister creative rising and just start taking that action and one way to do that is to share this episode, help other people find this amazing organization. So please send this to anyone you think may be interested. And thank you for listening.

The Mother-Daughter Duo Making Art Inclusive Meet Claire Jones and Amaranthia Sepia, the mother-daughter duo leading Sista Creatives Rising. The mission of Sista Creatives Rising is to empower marginalized women and marginalized genders through art creation and accessibility. Claire and Amaranthia, who both have invisible disabilities, prioritize showcasing art that deals with mental health, disability […]

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